Introduction to Disability Studies the Issue of Disability Discussion - Humanities
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J Med Humanit (2013) 34:139–147
DOI 10.1007/s10912-013-9208-x
Queer/Fear: Disability, Sexuality, and The Other
Nancy J. Hirschmann
Published online: 8 March 2013
# Springer Science+Business Media New York 2013
Abstract This paper examines the relationship between disability and “queerness.” I argue
that the hostility frequently expressed against both disabled and queer individuals is a
function of fear of the undecidability of the body. I draw on feminist, queer, and disability
theory to help us understand this phenomenon and suggest that these different kinds of
theories have a complementary relationship. That is, feminist and queer theory help us see
how this fear works, disability theory helps us see why it exists.
Keywords Disability . Queer theory . Feminist theory . Fear . Hostility
In 2013, when states allow gays to marry or form domestic partnerships and adopt children;
when many insurance policies cover transsexual operations; when increasing numbers of our
students openly challenge gender lines in their dress, manners and behavior; when “don’t ask,
don’t tell” has been consigned to the rubbish heap of bad ideas, and gays and lesbians can serve
openly in the military: why is there still such hostility to “queers”? When Matthew Sheppard
was beaten to death, strung up on a fence and left to die, the vast majority of Americans were
horrified and saddened (Healy 2008); but isn’t that all behind us?
Unfortunately no: gay kids are beaten up and persecuted every day, gays and lesbians are
still discriminated against, and transgendered and transsexual individuals are still subject to
ridicule, exclusion, hostility and outright violence. In this paper I draw on disability to help
explain this problem, which I believe involves the way in which repugnance toward the
other is a cover for fear of the self. I take a theoretical approach to understanding one
particular dimension of the intersection of disability and LGBT or queer theory, namely the
undecidability of the body and the ontological and epistemological uncertainty this produces
for the human experience.
There are many ways in which being “queer” and being “disabled” intersect, and the
naming is, of course, only the first. As Butler describes it, “naming” is a process “by which
one is, quite without choice, situated within discourse” (1993). Homosexuality was indeed
considered a “disability” for many years (Rauch 2004), and despite its accepted place in
ancient society, its naming called it into being as a deviant practice in the modern era, a
process that Louis Althusser labeled “interpellation,” which is “an act of discourse with the
power to create that to which it refers,” (Butler 1993,122, see Althusser 1971). In particular,
N. J. Hirschmann (*)
The University of Pennsylvania, Philadelphia, PA, USA
e-mail: njh@sas.upenn.edu
140
J Med Humanit (2013) 34:139–147
discourses of illness and “curing” took particular prominence at various points in history,
most recently in the 1980s United States (McGruer 2002).
What queer and disabled individuals are called, by themselves and by others, is itself a
political, ontological, and epistemological issue. Gays, lesbians, transgender, transsexual and
bisexual individuals have struggled for years over the naming of identity—not just the
hostile epithets and derogatory terms used to describe and name them, but the battles within,
as feminism and women’s studies gave way to lesbian studies, which gave over to gay
studies, a term which may or may not include lesbians. Soon after, bisexual was added to the
mix, at which point the academic field became known as LGB studies, followed by the
further addition of transgender and transsexual issues—LGBT—and finally recapturing the
derogatory term “queer” to encompass it all and more, but operating through a critical
distance that acknowledged the constructed character of categories of sexuality—for indeed,
the “Q” is used to stand in for “questioning” as often as “queer.” Intersex (also sometimes
including “intersectional”) was later added, but questioning/queer was still the final and
encompassing term: LGBTIQ (Aragon 2006). In this essay, I will adopt the term “queer” as a
shorthand to include this variety of sexual identities that challenge and resist the heterosexual and heteronormative imperative though I will also make reference to specific sexual
identities at various points.
In similar, if not parallel, struggles, disabled individuals have worked through the
terminologies of “crippled,” “handicapped,” and then “disabled,” which ushered in a
recognition of the constructed character of linguistic and social evaluations of bodily
difference. Whereas what became known as the “medical model” of disability viewed
handicap-cum-disability as stemming from a defective body that either had to be cured or
set aside, the “social model” of disability maintained that certain bodily features were
favored and others disfavored by the built environment—such as stairs and narrow doorways
that block wheelchairs—as well as social attitudes, such as the belief that a disabled worker
will be less productive and capable than a nondisabled one. In other words, society made
certain people disabled, not their bodies. Some feminists, like Iris Young (1980), latched
onto this “social model” to argue that patriarchy “disabled” or “crippled” women by not
teaching them how to use their bodies efficiently, or indeed teaching them to use their bodies
in self-defeating ways–an argument that ironically contradicts disability perspectives by
viewing disability in exclusively negative terms.
Along the way, “impairment” gained a fairly secure foothold for describing the divergence of certain bodies from their “normal” functioning, and “disability” became exclusively a term to describe the social disadvantage to which a particular society puts a particular
impairment. This closely mirrored the distinction feminists had developed between “gender”
as a category of social roles and treatment that attached to certain bodies and “sex” as a
category of the body that was free from social influence. But of course, as Judith Butler
showed us, such a division creates as many problems as it addresses. Butler upended
feminist theory when she challenged the accepted wisdom that “sex” constituted the
biological reality of female bodies (such as reproductive organs), whereas “gender” constituted human-made social roles (for instance, women as mothers), arguing instead, following
Foucault, that sex and the sexed body itself are socially constructed and constituted by
language and discursive practices. Though many disability scholars continue to embrace
enthusiastically this binary and demonize the medical model, others attuned to Butler’s
criticism and indebted in many ways to the advances made by feminist theory more broadly
speaking have increasingly become skeptical of bifurcating the social and medical models.
Indeed, one could readily argue that the often-maligned “medical model” of disability
emerged out of Enlightenment thinking about the power of human agency; rather than
J Med Humanit (2013) 34:139–147
141
simply accept illness as “fate” or “God’s will,” science and medicine were seen as ways in
which humans could construct and change illness by social intervention (Kudlick 2011). In
other words, one might suggest, the medical model was “always already” social.
More pedestrian similarities, parallels, and intersections between disability and queerness
abound, of course, such as the feminization of disability such that a disabled man is
perceived as weak and helpless, regardless of what any disabled man or woman
(or nondisabled man or woman for that matter) could actually achieve; much as gay men
are feminized and denigrated by being labeled women—a term that is supposedly neutral in
everyday discourse but which becomes a mark of contempt when used to refer to men.
Simultaneously, though disabled women could be seen as hyperfeminine because of their
heightened physical vulnerability, they are much more often seen as unfeminine or of
distorted, perverted femininity insofar as their impairments cause them to fail to meet
standard ideals of feminine beauty, much like lesbians are often viewed as perversions of
the feminine and hence in need of “a good fuck” to restore their essential femininity (read as
“subordination”) (Samuels 2002, Thomson 2002).
All of these similarities are important and the subject of appropriate exploration (see
McGuer and Wilkerson 2003). But the commonality I focus on in this essay is the way in
which both queer and disabled persons are feared by heterosexuals and able-bodied,
respectively. In Bodies that Matter, Judith Butler states that “heterosexual performance is
beset by any anxiety that it can never fully overcome, that its effort to become its own
idealization can never be finally or fully achieved, and that it is consistently haunted by that
domain of sexual possibility that must be excluded for heterosexualized gender to produce
itself” (1993, 125). And of course stories of violence against gay and transgendered men in
particular pervade the popular news; derogatory jokes about gays and lesbians permeate the
mainstream media. Similarly, fear of the disabled is well documented in disability studies.
Rosemarie Garland Thomson argues that the disabled are “the ultimate other” because
the able bodied know that they could become disabled at any time, and they fear that
possibility: “Cast as one of society’s ultimate ‘not me’ figures, the disabled other
absorbs disavowed elements of this cultural self, becoming an icon of all human
vulnerability and enabling the ‘American Ideal’ to appear as master of both destiny and self”
(1997, 41). Or as Tobin Seibers puts it, “Disability is the other other that helps make otherness
imaginable” (2008, 48).
Indeed, Siebers claims “In no other sphere of existence [other than disability]…do people
risk waking up one morning having become the persons whom they hated the day before”
(26). But the examples he draws on—“the white racist suddenly transformed into a black
man…,the misogynist into a woman”—are self-referential, focusing on people who already
hate a particular other: not all whites, just racist ones; not all men, just misogynist ones. The
analogy is thus faulty. For he goes on to posit that all able-bodied people fear and hate all
disabled individuals, a claim that ignores or outright denies the large numbers of nondisabled
people who love and care for individuals in their families or among their friends who have
disabilities. He also fails to include gays, lesbians, and transgendered individuals among the
“hated” groups. Yet I maintain that LGBTIQ individuals are the most similar to the disabled
in this way, in that both embody the universal fear that the body is not given, determined,
and determinate. Sexuality, like ability, can shift, alter, and change more readily than race or
ethnicity, or even, taking into consideration current surgical developments, sexual phenotype. Moreover, as I have just implied, hatred is the wrong word; or more specifically, I
maintain that such hostility and antagonism is generally a cover for fear.
The nature of this fear is two-fold. The first is the immediate fear of becoming sick or
disabled oneself, which leads to a psychic and social investment in the denial of the
142
J Med Humanit (2013) 34:139–147
humanity of disabled people: if their humanity is recognized, then the recognition of the
possibility of becoming disabled oneself becomes more immediate, more real. The visibly
disabled are often looked at with repulsion, emblemizing “the rejected body” in Susan
Wendell’s phrase; the disabled body serves as a material reminder of human weakness, of the
inevitability of the decay of the flesh (Wendell 1996; Hockenberry 2004, Shakespeare et al.
1997). As Martha Nussbaum notes, “Normals know that their bodies are frail and vulnerable, but when they can stigmatize the physically disabled, they feel a lot better about their
own human weakness” (2004, 219). Accordingly, Nicholas Watson notes that “disabled
people face a daily barrage of images of themselves as other, as unworthy, as something to
be feared” (1998, 161). The fear of disability is pervasive and perhaps transhistorical,
ranging from disabled infants being abandoned to die in ancient Greece and Rome up
through the modern era’s “ugly laws” which barred disabled individuals from appearing
on the streets and other public spaces in the nineteenth and early twentieth centuries to
nightmarish institutions like Willowbrook in our own time (Schweik 2009, Tyor and Bell
1984; but see Rose 2003).
But as opposed to racism and sexism, which is fear of the not-self, of the different-fromself, fear of the disabled is fear of oneself, a fear of what might happen to one’s own body. I
realize this statement can be misconstrued; I fully recognize that “difference” is a construction regardless of the content and that categories of “race” and “gender” are produced as
social meanings that are attached to particular bodily configurations such as skin color and
genitalia. In this, race and gender are quite similar to disability. But in terms of race and
gender, those bodily configurations, though subject to interpretation, meaning, language and
discourse, are nevertheless “there.” To make my point clear, if graphic: regardless of what
feelings a person called a “woman” who has a vagina has about her sexual identity, she will
not wake up tomorrow with a penis between her legs, any more than the white racist will
wake up tomorrow with black skin. A sexist man may have his penis suddenly cut off, but he
will not get a vagina in the process; he will not become a woman (assuming he lives).
Indeed, the lengths to which the “man” must go to have a vagina surgically constructed and
to make a change from male to female—or for a “woman” to go from female to male—are
great, and take a considerable amount of time, not to mention that a great deal of emotional
and psychic energy is required leading up to the physical change. By contrast, disability can
and often does happen suddenly, and it happens every day to many people: any given
“healthy” individual could pick up an autoimmune virus at any moment. Genetic predispositions to certain conditions could be suddenly triggered by the pollutants in the air
accumulating in our bodies over a lifetime or the stressors of one’s job. Some of these
changes could build up gradually, but they nevertheless reveal themselves suddenly, once a
tipping point is reached. And of course, accidents such as automobile collisions happen daily
and often produce a sudden, rapid, and dramatic change in people’s bodily configuration and
ability. The rapidity and suddenness of such bodily changes remind us that our bodies
are not essentially given to us but rather are in states of flux and uncertainty. This is
frightening to most people.
Accordingly, as Thomson maintains, “Disability’s indisputably random and unpredictable
character translates as appalling disorder and persistent menace…. the self gone out of
control…At once familiarly human but definitively other, the disabled figure in cultural
discourse assures the rest of the citizenry of who they are not while arousing their suspicions
about who they could become” (1997, 43, 41). This understanding of the fear of disability
makes the comparison between disability and sexuality pertinent if we understand “the
body” to include not just the corporeal body but also the way in which we perceive,
understand, and experience our own bodies. For that, after all, is the foundation of the fear
J Med Humanit (2013) 34:139–147
143
of the corporeal changes that the body may undergo in disability. Even if a sexist man will
not wake up tomorrow with a vagina, he nevertheless suddenly may start to realize that he is
“really” a woman “trapped” in a man’s body, or even simply that he has sexual desires for
other men. The white racist is not likely to start wondering if he is “really” black; his fear is a
fear of difference and of threat of the loss of white privilege, or perhaps even a fear that
blacks may not “really” be so different from himself, thereby undercutting his justification
for privilege. By contrast, the fear of the gay or lesbian or transsexual is a fear of what one
already may be. The process of physical transformation from male to female and vice versa
is lengthy, protracted, and difficult; by definition it requires intentionality, decision, and
choice. But shifts in gender and sexual identity, in how we see and think of ourselves, our
desires, and our identification framework can happen much more quickly, subtly, and can
even “creep up” on us or be suppressed until we are suddenly forced to notice. Queer theory
has shown us that sexuality is a highly variable feature of being and the body.
Butler’s challenge to the sex/gender binary cast many feminist, queer, and other kinds of
critical theorists’ understanding of the body into a state of flux and uncertainty: what Derrida
(1992) called undecidability. This undecideability of the body means that sexuality is not
something set firmly with rigid boundaries: those boundaries may be established by cultural
practices as a way to protect social hierarchies as well as to solidify identity and remove the
question of sexuality from the realm of uncertainty to make it more solid than it is as a way
to combat anxiety. But the process of internalizing them into our psyches is never complete;
uncertainty remains.
Such uncertainty similarly characterizes health and ability; indeed, disability brings this
uncertainty and flux into view in a particularly sharp manner for the reasons I just articulated: the body can change radically and dramatically in an instant. And of course, if one is
supremely lucky, one may live into old age, which will bring more gradual impairments such
as loss of mobility, hearing impairment, cognitive difficulties, and a range of other problems;
as Lennard Davis notes, people over 65 make up one-third of people with disabilities (1995,
8). This is something we cannot avoid knowing; we all know old people, and even if we feel
contempt or disgust for them (as, for instance, teenagers and young adults often do), such
feelings are in part generated by the knowledge that that is what we could become. But
whether disability happens suddenly or relatively gradually, the change in the body is
decidedly material; it affects one’s physical encounters with the world regardless of people’s
attitudes, in contrast to say, skin color, which impacts one’s interactions with the world
predominantly as a result of prejudicial treatment. Even in the most supportive environment,
using a wheelchair produces a different orientation to the physical world than does walking;
in some contexts, the wheelchair may be a disadvantage, in others neutral, in still others an
advantage, but it is always different. And it always signals the ways in which one’s own
body is subject to change beyond one’s control.
Because disability is a visible reminder of what one fears about the self, hostility toward
the disabled, like hostility and aggression toward gays, lesbians, and transgendered individuals, keeps such fear at bay by exaggerating the difference and distance between self
and other, turning such others into a categorical “Other,” an alien being that the self could,
presumably, never become. One of the effects is to force such otherness into hiding, thereby
removing the signs of uncertainty from view. Just as such hostility ...
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