Tobacco Use in France Is my topic - Writing
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FINAL PROJECT: Research a topic and write an executive summary
You will be assigned one of the topics listed on the next page. Prepare an executive summary to
be presented on the last day of class. The presentation will not be formal but will consist of
answering questions about your summary. On the next page you will also find some resources
you may find helpful. Feel free to use other resources as well, as long as they are credible.
PART 1:
Write a two to three-page executive summary of your project. The following must be addressed
in your executive summary.
Problem: Identify the country that you are studying with a very brief overview of the country,
specifically what would be relevant to your topic. Briefly describe the nature of the problem
including its overall impact on mortality (death) and morbidity (disease) of the specific
population you are studying. Use concepts of incidence, prevalence and other measures of the
burden of disease. Please make this specific to the country you are studying. You must identify
the source of your data.
Cause: Identify the risk factors that increase the probability of this problem occurring or risk
factors that impact the outcome. You must identify the source of your data.
Interventions: Identify 5-8 options for potential interventions to address the problem. For each
of the options, identify the primary focus in terms of WHEN (primary, secondary, or tertiary
prevention), WHO (individual, at-risk group, or entire population), and HOW (education,
motivation, obligation).
Implementation: From those potential interventions, select three that you identify as most
effective, and explain why. Indicate methods that you would use to implement the options that
you have selected. You must identify the source of your information.
PART 2: Be prepared to discuss your topic and answer questions on Friday during our morning
conference. You do not have to have a prepared presentation, but we will ask questions about
your topic to create discussion of the topic.
Reference list: A minimum of three references are required. Please include a complete
reference list at the end of your executive summary. Be sure to cite these references in your
executive summary.
List of suggested resources:
www.who.int
www.unicef.org
www.cdc.gov
www.globalhealth.org
www.prb.org
www.dcp2.org/pubs
www.dcp2.org/pubs/GBD
www.embassyworld.com
www.worldbank.org
List of suggested resources, continued:
http://www.un.org/sustainabledevelopment/health/
References at end of chapters in text
Professional journals
Schools of Public Health
List of topics:
Covid-19 in New York, U.S.A
Covid-19 in South Korea
Tobacco Use in France
Tobacco Use in Greece
Obesity in Finland
Sexual assault among the Inuit
Child Sex Trafficking in Thailand
Diabetes in China
Diabetes in the United States
Cardiovascular Disease in UK
Cardiovascular Disease in Mongolia
Alcoholism in Russia
Measles in Ukraine
Measles in the Democratic Republic of Congo
Polio in Pakistan
Tuberculosis in India
Tuberculosis in Indonesia
Obstetric fistula in Tanzania
Obstetric fistula in Ethiopia
Malnutrition in Somalia
Ebola Hemorrhagic Fever in Democratic Republic of Congo
Diarrhea in Uganda
Lead Poisoning in Flint, MI, USA
HIV/AIDS in Thailand
HIV/AIDS in Canada
Cholera in Yemen
Malaria in Viet Nam
Opioid crisis in Ohio, USA
Lassa Fever in Nigeria
Humanitarian Emergency in Syria
27 September 2013
An Evidence Brief for Policy
Advancing the Integration of Palliative
Care in the National Health System
Executive Summary
-
Included:
Description of a health system problem
Viable options for addressing this problem
Strategies for implementing these options
Not included: recommendations
This policy brief does not make recommendations
regarding which policy option to choose
Who is this evidence
brief for?
Policymakers, their support staff, and
other stakeholders with an interest in
the problem addressed by this
evidence brief
Why was this evidence
brief prepared?
To inform deliberations about health
policies and programmes by
summarizing the best available
evidence about the problem and
viable solutions
What is an evidence
brief for policy?
Evidence briefs for policy bring
together global research evidence
(from systematic reviews*) and local
evidence to inform deliberations about
health policies and programmes
*Systematic Review: A summary of
studies addressing a clearly
formulated question that uses
systematic and explicit methods to
identify, select, and critically appraise
the relevant research, and to collect
and analyse data from this research
Full Report
This evidence brief was prepared by the Uganda country node of the Regional East African
Community Health (REACH) Policy Initiative
The evidence summarised in this
Executive Summary is described in
more detail in the Full Report
.
Key messages
The problem:
High Palliative Burden
Cancer and HIV/AIDS account for 80\% of the patients in need of palliative care in Uganda.
Patients with cardiovascular disease, liver and renal pathology, and neurological and respiratory
diseases may also require such care. The current minimum palliative healthcare burden in Uganda
is approximately 137,700 patients. Given that an additional two family or voluntary caregivers per
patient may also need support, it is therefore likely that the total number of people requiring help is
nearer 413,000. Nearly 90\% of patients in Uganda who need palliative care do not access such
services.
Policy options:
1) Home-based care for end-of-life patients
2) Supporting informal caregivers
3) Planning for discharge in palliative care
1. Home-based care for end-of-life patients increases the likelihood of the terminally ill dying at
home, may increase patient satisfaction at one month of follow-up, but may lead to a reduction in
the psychological well-being of caregivers who look after patients surviving more than 30 days.
2. Interventions to support informal caregivers may reduce the psychological distress and increase
quality of life of carers, but may reduce the ability of carers to cope with their role.
3. Discharge planning probably reduces both the length of hospital stays and unscheduled
readmission rates at 3 months, but leads to little or no difference in mortality.
o Given the limitations of the available evidence, rigorous evaluation and monitoring of resource
use and activities are needed for all the selected options within the local context.
Implementation strategies:
A combination of strategies is needed to implement the proposed
options effectively
o
o
o
o
Strategies to improve the knowledge, competency and care-seeking behaviour of families include:
providing home-based care, using Village Health Teams, and providing vocational education and
training
Strategies to improve the knowledge, competency and attitudes of healthcare providers include:
educational meetings, information, education, and communications interventions
Subcontracting and cost sharing for financing
Use of community volunteers and structured referral sheets to improve referral processes
The problem
The need for palliative care is urgent: globally, an estimated 35 million people experience
pain and suffering caused by old age and life-limiting conditions such as cancer, AIDS, and
other chronic diseases.(17) Kikule (2003) investigated the state of palliative care for the
terminally ill in Uganda, and found that 58\% of patients require pain relief and other forms
of symptom control. 30\% of patients experienced a loss of income, 5\% needed counselling
support, and 7\% required other forms of support such as spiritual guidance. (21)
Current efforts to expand palliative care services nationally include the provision of
facility-based and community-based services, as well as training, education and research. (8)
Most palliative care in Uganda is provided in isolated centres of excellence which are not
comprehensively integrated across the different levels of the health system structure. The use
of palliative care teams, which is recommended by the WHO, is also uncommon.(19) Many
stakeholders in Uganda have indicated that there is need for a national palliative care policy
which can provide a guiding framework for such services. (6) (31)
Size of the problem
Cancer and HIV/AIDS account for eighty percent of the patients needing palliative care in the
country.(32) Patients with cardiovascular disease, liver and renal pathology, neurological and
respiratory disease may also require palliative care.(32) The current minimum palliative
healthcare burden is close to 138,000 patients.(36) An additional 2 family or voluntary
caregivers per patient requiring support comes to a total 413,000.
Less than 10\% of patients in Uganda who require palliative care access such services. (35)
There is a disproportionate effect on women and girls both as sufferers and informal carers in
the palliative burden. (38) (40) (41) Currently, there is limited access to oral morphine which
is used for pain control and to adjuvants used for the control of side effects to morphine such
as nausea, vomiting and constipation.(43)
Cause of the problem
The burden of palliative care is heightened by a number of factors at the community and
health systems levels. Most terminally ill patients in Uganda prefer to be cared for at home by
their families, as doing so is perceived to offer better security and privacy. Home-based
palliative care also helps to minimize the costs involved. (21)
There is widespread lack of awareness among the public, policymakers and health providers
about the need for palliative care services. Typically, palliative care is perceived only as endstage support care for the dying. (49) Key challenges to integrating palliative care within the
health sector include the lack of adequate infrastructure, shortages of trained palliative care
staff, and insufficient and unstable funding. (52) (35) (49, 52)
There is insufficient local research to inform health decision-makers who need a sound
knowledge base to understand the complex burden and best models of care.(48)
1
Policy options
National stakeholders in Uganda who are involved with the provision of palliative care have
attempted to identify potential policy solutions that can aid the scaling up of palliative
services within the health system.(6) To this end, attempts have been made to summarize
the best available evidence for some of the interventions proposed, but many potential
options still require further rigorous investigation.
The three policy options presented in this section can potentially be adopted independently,
but they also complement one another. Home-based care increases the probability that
terminally ill patients will experience a peaceful death surrounded by their loved ones, and
improves the quality of life of informal caregivers. Discharge planning also helps to reduce
unscheduled admissions and may also free up capacity for acute care services.
Policy Option 1:
Home-based care for end-of-life patients
‘End of life’ refers to the period when death is inevitable and imminent. The primary aim of
any treatment at this stage is to improve the patient’s quality of life as opposed to extending
length of life or curing the illness.(13)
The dying patients’ quality of life takes into account; physical comfort and functioning,
psychological and spiritual well-being, cognitive functioning, general meaningfulness of life,
as well as, the quality of life of family and loved ones.(46)
Home is more than a physical space; it is a ‘normal’ space where one is surrounded by family
and friends and the majority of people with progressive illness wish to die at home. (54)
Impact of Home-Based Care for End-of-Life
A good quality systematic review by Shepperd and colleagues (2011) from high income
settings investigated the impact of home-care programs for end of life care.(57)
The review found that home-based care compared to usual care:
Increases the likelihood of terminally ill patients dying at home
May increase patient satisfaction at one month of follow-up
May lead to a reduction in psychological well-being for caregivers of patients who
survive more than 30 days
Policy Option 2:
Supporting Informal Caregivers
Informal or unpaid caregivers in palliative care, (described earlier) include family, friends or
volunteers offering support to patients unable to cope on their own.(40)
Caregivers of patients with progressive illness suffer from a number of problems;
sleeplessness, general deterioration in health, exhaustion, anxiety and depression.(60)
2
A literature review by Harding et al., 2011 describes groups of interventions to support carers
that are currently being developed and tested. (61) These include; Psychological support,
Palliative Care/Hospice services, Information and training, Respite Services and Physical
Interventions, such as yoga. (61)
Impact of Supporting Informal Caregivers
A good quality systematic review by Candy and colleagues (2011) assessed a range of
supportive programs for caregivers which included psychological support and practical
assistance.(41)
The review found that supporting informal caregivers of patients in the terminal phase of
disease compared to usual care may:
Reduce psychological distress in informal caregivers
Increase quality of life for carers
Reduce coping with the caring role
Policy Option 3:
Planning for Discharge in Palliative Care
Most patients suffering from chronic disease are likely to experience frequent acute on
chronic episodes requiring care within specialized units. It is desirable to reduce, where
possible, demand for in-patient care through provision of acute care services at home or in
the community.(62) Non-medical reasons delaying a patient hospital discharge account for
approximately 30\% of cases and usually result from poor knowledge of the patient’s social
circumstances; deficient logistical organization, and inadequate communication between the
hospital and community service providers.(63) Discharge planning aims to rectify these
avoidable causes through the development of an individualized plan for the patient prior to
leaving hospital. (62)
Impact of Discharge Planning
A good quality systematic review by Shepperd and colleagues (2010) investigated the effect of
discharge planning on unplanned readmissions to hospital, unscheduled readmission within
3 months of discharge from hospital for patients with a medical condition and other
outcomes.(62, 65)
The review found that discharge planning compared to usual care probably:
Reduces slightly length of hospital stay
Reduces unscheduled readmission rates at 3 months
Leads to little or no difference in mortality
3
Implementation considerations
Key barriers to implementing the policy options and implementation strategies to address
these are summarised in the table below.
Table 1. Implementation considerations
Barriers to implementation
Strategies for implementation
Knowledge, competency and care seeking
behavior of families
Home-based care
Most terminally ill patients in Uganda prefer to be
cared for at home by their families as this provides
security, privacy and helps to minimize costs. But
factors such as social prejudice or the stigma of
illnesses such as HIV/AIDS, may result in patients
and their families being socially isolated.(21)
There is a widespread lack of awareness among
members of the public, among policymakers, and
even among health providers, about the need for
palliative care services.(49)
Home based care facilitates dying with dignity at home and involves
family, friends and the neighbors, suitable for a traditional African
setting. This increases the probability of patients dying from home,
increases patient satisfaction and reduces hospital admissions. (57)
Village Health Teams
Village Health Team (VHT) is an elaborate strategy implemented by
MoH to mobilize individuals and households for better health; such
as referral to health facilities. (68)
Vocational education
Vocational Education for informal care givers during initial
hospitalization of patients in need of PC could be considered as part
of the package to prepare family members to give care at home. (39)
(69)
Knowledge, Competency and Attitudes of
Healthcare Providers
Many health providers regard palliative care as endstage support for the dying which diverts precious
time and resources away from curable conditions.
(49).
Information, Education, Communication
Dissemination of educational materials (IEC) in this case clinical
guidelines dissemination improves professional clinical practice.
Clinical and other guidelines are available from Hospice Africa
Uganda and the African Palliative Care Association.(13, 70) The
Mulago Palliative Care Unit has released treatment protocols to be
used in hospital settings.(29)
Educational meetings
Evidence of moderate quality shows that the distribution of
educational materials to health professionals improves the process
of care and patient outcomes. (71)
A synthesis of evidence of low quality shows that educational
meetings improve patient care. (71)
However, these studies were not specific to PC and done in high and
middle income countries.
Inadequate financial resources
Sub-Contracting
Most palliative care centres of excellence in the
country rely on external donor funding and this
makes planning difficult.(35, 49)
Public Financing with contracting services to suitable private
providers, as part of a comprehensive integrated health care
programme. This programme would be free to the recipients of PC.
A demonstration project in Catalonia, Spain used a beneficial
contracting socio-health system based on the combination of
payment for structures, daily fees for beds (units), quality assurance,
incentives, and structural reconversion assistance. The preliminary
4
results showed that more than 80\% of the investment was saved,
through the radical changes in costs.(72) Low quality evidence
suggests that out contracting may improve patient outcomes and
reduce household expenditures. (73)
Cost-Sharing
Cost-sharing mechanism between providers and recipients of PC to
offset a proportion of the financial requirements. Hospice Africa
Uganda operates a model that allows PC recipients to pay 10\%
(UGX: 5,000/-) per week, towards the total cost of UGX: 45,000/- for
care per week, independent of the number of visits and medications.
About one third of PC patients can manage to pay. Those who
cannot afford are then assisted. (25)
Inadequate facilities and referral processes
Effective Referral Strategies that;
Diagnostic processes, referring and transferring
patients present a bottleneck to effective health
services. Long distances to health facilities and
concerns that drugs are not available are among
the most significant factors reported affecting
access to health care. (74, 75)
a)
Competing priorities
Integration of Services
Palliative care has not been prioritized for
investment as part of the Ugandan Ministry of
Health’s 5 year plan.(28)
Currently, the four areas of health that form the
focus of attention in the third Health Sector
Strategic Plan are: 1) sexual and reproductive
health, 2) child health, 3) health education, and 4)
the control and prevention of communicable
diseases (HIV/AIDS, malaria and tuberculosis). The
allocation of resources specifically for noncommunicable diseases (such as cancers and endstage organ diseases) will be therefore be
challenging, despite the fact that these greatly
contribute to the need for palliative care in Uganda.
The rise in the burden of palliative care in Uganda
is also related to the rise of HIV/AIDS.
Integrated PC at all levels of service delivery with specific roles at
each level so as to avoid additional costs (direct and indirect) due to
displacement of resources from priority areas by implementing PC as
a parallel programme. The World Health Organisation provides
guidance on integratio ...
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