SOWK 6090 Schizophrenia Over Time: Experiences Living With the Illness - Humanities
Submit a 3- to 4-page paper, supported by at least 4 scholarly resources (not including DSM-5), in which you address the following:Describe Saks’s or McGough’s experiences with schizophrenia.
Identify onset, associated features (specifically referencing the
positive and negative symptoms), development, and course. Explain how you would use the Clinician Rated Dimensions of
Psychosis Symptom Severity measure and the WHODAS to help confirm your
diagnosis.Explain how you would plan treatment and individualize it for Saks
or McGough. Support your response with references to scholarly
resources. In your explanation, consider the following questions:What are the long-term challenges for someone living with the illness?What social, family, vocational, and medical supports are needed for long-term stabilization?
Briefly explain how race/ethnicity, gender, sexual orientation,
socioeconomic status, religion, or other identity characteristics may
influence an individual’s experience with schizophrenia.Experiences of schizophrenia are not
homogeneous; there is wide variety in onset, course of illness, and
combinations of symptoms. Social workers need to be able to understand
the different manifestations and pathways of the illness to plan
interventions. Social work services play a key role in stabilizing
crises, supporting family coping, and influencing overall quality of
life and outcomes of individuals with schizophrenia. In this Assignment,
you practice applying this necessary individualization.To prepare: In the Learning Resources,
focus on the associated features, development, and course of the
illnesses in the schizophrenia spectrum. Also focus on descriptions of
the disorder and the way it develops for different individuals.Choose two articles from the list in the
Learning Resources that apply to treatment support and interventions for
the schizophrenia spectrum and other psychotic disorders chapter in the
DSM 5. Choose either Saks or McGough to focus on for this assignment.The ted talk for McGough is this:
how_occupationally_high_achieving_individuals_with_a_diagnosis_of_schizophrenia_manage_their_symptoms.docx
the_lived_experience_of_schizophrenia_a_systematic_review_and_meta_synthesis.pdf
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How Occupationally High-Achieving
Individuals With a Diagnosis of
Schizophrenia Manage Their Symptoms
Amy N. Cohen
, Ph.D.,
Alison B. Hamilton
, Ph.D., M.P.H.,
Elyn R. Saks
, J.D., Ph.D.,
Dawn L. Glover
, M.A.,
Shirley M. Glynn
, Ph.D.,
John S. Brekke
, Ph.D.,
Stephen R. Marder
, M.D.
Published Online:15 Nov 2016https://doiorg.ezp.waldenulibrary.org/10.1176/appi.ps.201600031
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Abstract
Objective:
The study objective was to elucidate coping strategies utilized by individuals recovered from
schizophrenia.
Methods:
This qualitative study enrolled individuals with schizophrenia who had reached a level of
recovery defined by their occupational status. Diagnosis of schizophrenia was confirmed with
the Structured Clinical Interview for DSM-IV. Current symptoms were objectively rated by a
clinician. Surveys gathered information on demographic characteristics, occupation, salary,
psychiatric history, treatment, and functioning. Audio-recorded person-centered qualitative
interviews gathered accounts of coping strategies. Transcripts were summarized and coded with
a hybrid deductive-inductive approach.
Results:
Twenty individuals were interviewed, including ten men. The average age was 40 years. Sixty
percent of participants were either currently in a master’s-level program or had completed a
master’s or doctoral degree. Eight categories of coping strategies were identified: avoidance
behavior, utilizing supportive others, taking medications, enacting cognitive strategies,
controlling the environment, engaging spirituality, focus on well-being, and being employed or
continuing their education. Some strategies were used preventively to keep symptoms from
occurring; others were used to lessen the impact of symptoms. Strategies were flexibly utilized
and combined depending on the context.
Conclusions:
Use of strategies in a preventive fashion, the effectiveness of the identified strategies, and the
comfort individuals expressed with using several different strategies supported these individuals
in achieving their occupational goals. The findings contribute to an overall shift in attitudes
about recovery from schizophrenia and highlight the importance of learning from people with
lived experience about how to support recovery.
Treatment of schizophrenia is undergoing transformation. Outpatient clinical services are
transitioning from a medical model with an illness focus to a patient-centered model with a
holistic emphasis on well-being and functioning (1,2). Recovery from serious mental illness has
various operational definitions, but there is consensus around definitions that emphasize the
ability to live a fulfilling and productive life in spite of symptoms (3,4). Recovery has been
defined in both objective and subjective ways, incorporating concepts beyond symptom
stabilization to include well-being, quality of life, functioning, and a sense of hope and optimism
(5–11).
This study adds to a small but growing number of qualitative studies that have examined how
individuals manage their schizophrenia. For example, Cohen and Berk (12) reported on 86 lowincome patients with schizophrenia “who could tolerate a 30-minute interview.” Participants
were asked how they coped with each of 29 symptoms across the categories of anxiety,
depression, psychotic symptoms, and interpersonal stress. Explanation of coping was limited to
brief responses. The most frequent coping used across all categories was “fighting back,” an
active response, followed by a passive response of “doing nothing,” either in a helpless or an
accepting way. In a study with 47 low-income males with schizophrenia, Corin and colleagues
(13,14) categorized participants by the number of psychiatric hospitalizations after the initial
hospitalization. The authors found that those who were never rehospitalized frequented public
spaces (for example, restaurants) often and on a schedule that kept a routine and some social
interaction, had an active spiritual life, and had a particular way to restructure demeaning
language (for example, “lazy”) into something more constructive (for example, “relaxed
approach”).
To the best of our knowledge, no studies have addressed how individuals with schizophrenia
who also meet some definition of recovery manage their symptomatology. Occupational
functioning is one objective measure of recovery. The unemployment rate among individuals
with serious mental illness is around 80\% (15), and thus gainful employment connotes a
considerable degree of stability and recovery. The objective of this analysis was to provide firstperson accounts of coping strategies utilized by recovered individuals with schizophrenia.
Methods
Study Participants
The study used purposive and snowball sampling methods to identify eligible individuals in Los
Angeles. Study clinicians distributed letters and flyers to local National Alliance on Mental
Illness (NAMI) groups and community clinicians. In addition, a study investigator who is also a
consumer (ERS) made several presentations to various groups about her own recovery and
scholarly work, which generated referrals. Interested individuals contacted the study clinical
psychologist (ANC), who explained the study goals and methods. If the individual indicated a
willingness to participate, eligibility criteria were assessed.
Eligibility criteria were 21 years or older; diagnosis of schizophrenia; experience of at least one
persisting psychotic symptom in the past month at the level of 3 (mild) or higher on the Positive
and Negative Syndrome Scale (PANSS) (16); employed in an occupation categorized as
professional, technical, or managerial (per the Dictionary of Occupational Titles) or responsible
as a stay-at-home caretaker of children or elderly family or engaged as a full-time student;
maintained occupation for six continuous months within the past two years; and available to be
interviewed in person and willing to have the interviews recorded.
Forty-eight individuals responded, and 21 enrolled. Of the 27 not enrolled, some did not meet the
study criteria for diagnosis (N=4) or employment (N=15). Others chose not to enroll because
they lived too far away (N=2) or were not interested after hearing the methods (N=2). Four
individuals called about the study but were then unreachable for screening. Of the 21 individuals
who were enrolled, one completed the study procedures but later requested that the data be
excluded. Therefore, the analytic sample comprised 20 participants.
The study was approved by the institutional review boards (IRBs) of the University of
California, Los Angeles, and the University of Southern California. Interviews were conducted
from 2007 to 2010. Participants were compensated $100 per hour.
Procedures
Up to three in-person meetings were held with each participant.
First meeting.
At the first meeting, the study psychologist explained the study procedures and consent form and
completed the Structured Clinical Interview for DSM-IV (SCID) (17,18) to confirm the
diagnosis of schizophrenia and assess current and lifetime psychiatric symptoms. The PANSS
was also completed. Eight items from the Brief Psychiatric Rating Scale (BPRS) (19) were
completed, including delusions, conceptual disorganization, hallucinations, blunted affect, social
withdrawal, lack of spontaneity, manners and posturing, and unusual thought content. The
diagnostic interview session lasted approximately 1.5 hours. The psychologist was trained to a
standard of reliability on the SCID, PANSS, and BPRS and met annual reliability and quality
assurance standards. Individuals who consented and met criteria for schizophrenia were
scheduled for the second meeting.
Second and third meetings.
At the second meeting, participants completed a brief background survey and the Behavior and
Symptom Identification Scale–24 (BASIS-24) (20). The BASIS-24 assesses current symptoms
and functioning. After these brief measures were completed, the study psychological
anthropologist (ABH) conducted the person-centered interview.
Person-centered interview.
Derived from a psychotherapeutic, Rogerian model (21), person-centered interviewing is a
phenomenological approach that avoids imposing a preset structure on the way in which the
participant describes his or her experiences (22,23). As such, the method elicits what the
participant, rather than the researcher, perceives to be important or salient (24). In this study, as
required by the IRB, a list of key domains of interest was used to guide the content of the
interview so that consistent types of information would be gathered across interviews. However,
participants were encouraged to describe their experiences and perspectives extemporaneously,
with minimal structure imposed by the interviewer, and for some participants thorough coverage
across key domains was not possible.
The first interview generally addressed family of origin, illness history, education, and social
functioning. The second interview generally addressed current life, views of illness and
treatment, career, living situation, and daily life. Throughout both interviews, past and present
coping strategies were noted and highlighted. It is important to note that although these general
domains were proposed for the two interviews, participants were not prohibited from talking
about present-day experiences during the first interview or historical experiences during the
second interview. Instead, participants were encouraged to discuss their lives and coping
strategies in ways that made sense and felt comfortable to them as each aspect of their
development and illness course was discussed.
Data Analysis
The interviews were recorded and professionally transcribed. Transcripts were reviewed and
edited against the recordings by the study anthropologist as they were generated. ATLAS.ti was
used for management and analysis. All transcripts were read by the psychologist, anthropologist,
and three research assistants (RAs), who summarized each interview. A preliminary codebook
was developed collaboratively, focused on key domains and subdomains. Transcripts were then
independently coded by the RAs who were trained in ATLAS.ti. During the coding process, the
RAs, psychologist, anthropologist, and a study investigator (ERS) met regularly in order to
elaborate and adjust the codebook by using the constant-comparison analytic approach (25).
After coding of the interviews, multiple queries were conducted to examine the relationships
between the codes, and axial coding was used to link categories. For purposes of this analysis, all
text segments coded as “compensatory strategies,” “important quotations,” “medication
compliance,” or “mental health treatment routine” were reviewed by the psychologist to ensure
that coding was representative of the category and the sample and to facilitate a visual depiction
(via Excel) of the connections between coded segments, topics, and participants. Although the
codes of interest appeared in all 20 transcripts, we found upon careful review that four
individuals did not mention any specific coping strategies. The four individuals were not
different in demographic or psychiatric characteristics from the other participants; there was no
difference in the severity of their hallucinations or delusions, degree of unusual thought content,
or level of education achieved.
Results
Of the 20 participants, 13 completed all three sessions, and seven completed two sessions. Of the
seven individuals who did not complete a third session, two were lost to follow-up, three moved,
one died, and one completed all components in two sessions because scheduling a third was
anticipated to be difficult. The mean±SD time between the initial and the second meeting was
23±14 days (range four to 69 days). The mean time between the second and the third meeting
was 48±54 days (range ten to 188 days).
Sample Characteristics
All participants had a confirmed diagnosis of schizophrenia. Demographic information is
presented in Table 1. Half the participants were men, the average age was about 40 years, and
participants were from various racial-ethnic groups. Sixty percent of the sample was either
currently in a master’s-level program or had completed a master’s or doctoral degree. Across the
sample, most participants were employed full-time, and most made less than $50,000 a year.
Information about psychiatric and psychosocial functioning is presented in Table 2. Most
participants had a history of at least one psychiatric hospitalization and were currently prescribed
psychotropic medications. In the past week, on average, participants experienced a moderate
level of hallucinations and delusions.
TABLE 1. Demographic characteristics of 20 individuals with schizophrenia
Enlarge table
TABLE 2. Symptoms and functioning of 20 individuals with schizophrenia
Enlarge table
Person-Centered Interviews: Coping Strategies
Eight categories of coping strategies were identified: avoidance behavior, utilizing supportive
others, taking medications, enacting cognitive strategies, controlling the environment, engaging
spirituality, focusing on well-being, and being employed or continuing their education. The 16
individuals who identified strategies typically identified multiple strategies. Use of strategies
varied, with some used consistently and others used only when the person was faced with a
particular symptom. Illustrative quotes are provided below. [Additional quotes are available in an
online supplement.]
Avoidance behavior.
Participants discussed avoiding specific behaviors or situations to maintain stability. Individuals
discussed avoidance of alcohol and illegal drugs to circumvent symptom exacerbation.
Participants also mentioned avoiding situations that could be personally stressful or interpreted
as chaotic. If such situations arose without their effects being anticipated, the situation was
abandoned. For example, one individual said, “If I’m seeing something that is frightening . . . I
can’t watch the sci-fi channels ‘cause if it’s gory and bloody I know it’ll start my symptoms, so I
get away from that.” Avoidance of specific behaviors or situations most often was the result of a
trial-and-error process over the individual’s lifetime rather than a result of education or
instruction that these should be avoided. Typically, the individual experienced the situation
multiple times, always or often followed by an exacerbation of symptoms, and then decided that
it was best avoided.
Utilizing supportive others.
Most participants described connecting with family, friends, or professional supports as an
important strategy to provide objective insights into symptom exacerbation (for example,
psychotic thoughts and odd behavior) and nonjudgmental support during those times. One
participant said, “I think, ‘Who can I talk this [symptom] out with?’ and generally it’s [a friend].
It is not to fix what’s going on [symptoms] but to restore me to where I am comfortable.” Several
discussed participating in therapeutic groups (for example, NAMI) that provided considerable
peer support. Some participants highly valued working or being involved in a recovery-oriented
group or organization, where they were with like-minded individuals and felt implicitly
understood.
Taking medications.
Most participants discussed medications as a key part of their regimen to maintain or regain
stability. For some there was a distinct point (for example, a specific hospitalization or achieving
a desired life goal) at which they recognized the necessity of medication, and for others it was
knowledge gained after many medication trials. One individual stated, “I realized that I felt better
on the medication. . . . A light bulb went off on my head. And then after that I pretty much
understood the importance of taking the medication, which became more fully engrained into
me.” Individuals discussed the challenge and frustration of finding the medication that best
addressed symptom reduction and dealing with troublesome side effects (for example, lethargy
and weight gain). Participants explained that medication adherence did not mean disappearance
of symptoms, but rather enhanced stability. Medication adherence was varied, with a few
participants saying they had always been adherent, whereas others said they had been
nonadherent intentionally at times during their lives.
Enacting cognitive strategies.
Participants discussed specific cognitive strategies that they used in the face of symptoms—some
self-taught and others learned from a professional. These strategies involved ways to
systemically reason through their problematic thinking, its basis in reality, and possible
alternative interpretations. For example, one person said about hearing derogatory comments
from voices when driving alone down the road, “I think to myself is this—is this logical. I mean,
we both have our windows closed, we’re on opposite sides of the freeway . . . that couldn’t be
possible.” The cognitive strategies mentioned are similar to those taught and practiced as part of
evidence-based cognitive-behavioral therapy (CBT) for psychosis (26), and although individuals
did not specifically speak of engagement in CBT, they discussed how professionals had taught
them cognitive techniques.
Controlling the environment.
Participants described adjusting their surroundings to help prevent, minimize, or address
symptom exacerbation. One participant said, “I have to kinda prep my environment around me to
be able to be the way I am because I don’t like to be alone in my bedroom when I’m
symptomatic. It just freaks me out, ya’ know.” Some participants preferred quiet, calming
environments that are clear of clutter or distraction, and others liked to drown out the thoughts
and voices with environments filled with sounds and activity.
Engaging spirituality.
A few participants described ways in which they found support through religion and spirituality,
including one who said, “I [use] my Buddhist meditations.” Use of spirituality was for some a
form of social support and for others a place to avoid stress and find solitude.
Focus on well-being.
A few participants talked about the importance of exercise, diet, or wellness as a component of
staying psychiatrically stable or combatting symptoms. One participant said, “I started working
out like five days a week and that helped immensely . . . with symptoms, and like everything . . .
like my head is so clear.”
Being employed or continuing their education.
A few participants discussed the benefits of education or employment, especially because of its
absorbing and distracting nature but also for providing a sense of belonging. One participant
said, “I work on the weekends too because it’s just distraction, it’s good, it’s what I call the
distraction factor.”
Discussion
During the course of in-depth interviews, 16 participants with a diagnosis of schizophrenia
identified coping strategies that helped them with their symptoms. Most participants described
knowledge and use of multiple strategies—a menu of coping strategies. Typically, strategies
were discussed in relation to positive symptoms of the disorder (for example, hallucinations)
rather than negative symptoms (for example, avolition). Four participants did not identify any
specific strategies, perhaps because they were not aware that they were using strategies.
Participants articulated active strategies to combat symptom exacerbation; they did not describe
passive acceptance of symptoms, as found in the Cohen and Berk (12) study. Furthermore, many
strategies were preventive to keep symptoms from occurring. As in the sample in the Corin (13)
study, participants described the value of routine, the role of spirituality, and the importance of
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