Education Course - SPED/530: Introduction To Learners With Special Needs - Discussion – Least Restrictive Environment - Humanities
Discussion TopicLast week, you had an opportunity to develop an IEP for a student from a fictitious case study example. This week, you will focus on supporting students with autism, intellectual and development disabilities, and communication disorders.Read “Least Restrictive Environment (LRE) & FAPE” to review current and historical rulings regarding LRE litigation impacting students with disabilities and schools.Discuss the following questions in a minimum of 500 words: What are some challenges for schools in dealing with recent litigation that involves educational placements for their students with disabilities? Consider your own district. Are there students whose placements change simply because they are in a different school/district?What are some challenges for teachers in dealing with recent special education legislation? How have the rulings impacted classrooms on your campus or in your state?Explain and provide rationale to support your response. Be sure to respond comprehensively to all questions and support with scholarly research in APA Style in-text citations and a reference page.Be professional. Read and use the following articles and links synthesize to base the answers on:https://www.youtube.com/watch?v=Zz8gXfluwBs#action=sharehttps://www.edutopia.org/video/say-hi-milo-autism-robot
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research-article2015
FOAXXX10.1177/1088357615611880Focus on Autism and Other Developmental DisabilitiesAlverson et al.
Article
Focus on Autism and Other
Developmental Disabilities
2019, Vol. 34(1) 52–64
© Hammill Institute on Disabilities 2015
Article reuse guidelines:
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https://doi.org/10.1177/1088357615611880
DOI: 10.1177/1088357615611880
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High School to College:
Transition Experiences of
Young Adults With Autism
Charlotte Y. Alverson, PhD1, Lauren E. Lindstrom, PhD1,
and Kara A. Hirano, MEd1
Abstract
Youth with disabilities are less likely to enroll and complete postsecondary education than their nondisabled peers. Using
a qualitative, cross-case design, we investigated the high school to college transition experiences of young adults diagnosed
with Asperger syndrome (AS). Data sources included a family questionnaire, review of special education records, and
multiple individual interviews (N = 27) with young adults with AS, family members, teachers, and rehabilitation counselors.
Social skills, communication, and executive functioning challenges in high school continued into postsecondary education
settings. Across cases, five reoccurring themes seemed to influence the transition from high school to postsecondary
education: (a) motivation to attend college, (b) high levels of disability awareness, (c) intentional family supports, (d)
coordinated transition planning, and (e) clear postschool goals.
Keywords
high school, secondary transition, postsecondary education, Asperger syndrome
Changes in the labor market over the last several decades
have made postsecondary education critical for employability and economic stability (Carnevale, Smith, & Strohl,
2010). With the increasing demand for highly trained workers who have completed postsecondary education, preparing all students to exit high school college and career ready
has become the mantra of educational leaders and a focus of
federal legislation, including the reauthorization of the
Elementary and Secondary Education Act (U.S. Department
of Education, Office of Planning, Evaluation and Policy
Development, 2010). When examining postsecondary education and degree attainment, two key issues arise, enrollment in degree-granting institutions and persistence to
graduation.
Relative to enrollment in a postsecondary program, students with disabilities are less likely than their peers without disabilities (60\% vs. 67\%) to attend postsecondary
education within 8 years of leaving high school. For young
adults with autism, the rate of postsecondary enrollment
within 8 years after high school is 44\% (Newman et al.,
2011). Shattuck et al. (2012) found youth with autism from
higher income families and those with greater functional
abilities were more likely to attend college. Furthermore,
Shattuck et al. found that youth with autism have a high risk
for being unengaged in either postsecondary education or
employment during the first 2 years after high school.
Chiang, Cheung, Hickson, Xiang, and Tsai (2012) identified five significant predictors of postsecondary education
participation for individuals with autism: (a) primary post–
high school goal to attend postsecondary education, (b) type
of high school (regular vs. specialized), (c) parent expectations for enrollment, (d) annual household income above
US$50,000, and (e) above average academic performance
in high school.
In examining previous research regarding completion of
postsecondary programs, students with disabilities are less
likely than peers in the general population to graduate (41\%
vs. 52\%), and young adults with autism have a completion
rate of 39\% (Newman et al., 2011). Receiving appropriate
supports and accommodations is one factor related to the
success and persistence of students with disabilities in postsecondary programs (Hart, Grigal, & Weir, 2010; Mull,
Sitlington, & Alper, 2001). Although the Americans With
Disabilities Act of 1990 guarantees accommodations in
public institutions of higher education for students with disabilities, the onus for securing accommodations rests solely
1
University of Oregon, Eugene, USA
Corresponding Author:
Charlotte Y. Alverson, University of Oregon, 205 Clinical Services
Building, 5620 University of Oregon, Eugene, OR 97403, USA.
Email: calverso@uoregon.edu
53
Alverson et al.
on the student. Newman et al. (2011) found 72\% of students
identified by their secondary school as having a disability
either did not consider themselves to have a disability once
they transitioned to a postsecondary school (63\%) or chose
not to disclose their disability to the school (9\%). Nearly
37\% of students with autism in the National Longitudinal
Transition Study–2 (NLTS2) did not disclose their disability to their educational institution, therefore did not receive
accommodations (Newman et al., 2011).
The lack of formal accommodations is only one factor
influencing persistence to graduation. Other factors unique
to autism spectrum disorder (ASD) affect students in postsecondary settings, especially those diagnosed with
Asperger syndrome (AS), an ASD characterized by significant impairment in social interaction accompanied by
restrictive, repetitive, and stereotyped behaviors or interests
(Klin & Volkmar, 2003). Adults diagnosed with AS are
often socially isolated, remain dependent on their families,
and are unable to transition fully to independent adult roles
(Howlin, Goode, Hutton, & Rutter, 2004). Common interpersonal challenges include forming and maintaining work
and personal relationships, demonstrating age appropriate
behaviors, developing a full understanding of their disability, and lacking self-advocacy, coping, and problem-solving
skills (Browning & Miron, 2007; Roberts, 2010). Although
overall academic achievement may be average or above
average, youth with AS often exhibit uneven patterns of
performance with pockets of specialized knowledge and
highly focused interest areas (Sciutto, Richwine,
Mentrikoski, & Niedzwiecki, 2012).
Kidwell (2005) referred to the first year of college as the
purgatorial zone as students often struggle, not due to a lack
of intellect or aptitude, but due to challenges stemming
from leaving familiar surroundings, family, and friends,
and navigating the routines associated with being a college
student—finding classrooms, purchasing books, meeting
other students, understanding syllabi, and completing
assignments on time. This purgatorial zone can be debilitating for individuals with AS who have difficulties with
communication and social skills as well as unique needs
related to sensory integration and organization (Camarena
& Sarigiani, 2009).
Anecdotal reports of generalized challenges faced by
individuals with AS abound in the literature, often accompanied by recommendations for strategies to address barriers in postsecondary education (Browning & Miron, 2007;
Dillion, 2007; Wenzel & Rowley, 2010). However, there is
a dearth of empirical research documenting how these traits
manifest in college, and what high school transition services may better prepare individuals with AS for college.
The purpose of this study was to identify the unique personal and contextual barriers young adults with AS face in
postsecondary education and what high school transition
services youth need to be prepared for postsecondary
education. The overarching research questions were as
follows:
Research Question 1: What high school transition services do young adults with AS need to be successful in
college?
Research Question 2: What unique personal and contextual barriers do these individuals face when enrolling
and remaining in college?
Method
We used a phenomenological qualitative approach using
individual interviews over a 6- to 12-month time period to
examine the experiences of young adults with AS in transition from high school to college. Multiple, individual interviews with young adults, family members, teachers, and
rehabilitation counselors (N = 27) provided various perspectives on the transition process and early college experiences. A family background questionnaire contributed to
the understanding of the family structure, and, when available, participants’ special education records provided
insight into their school experiences. Qualitative methods
allowed us to gain a rich understanding of individuals with
AS, their families, and those who worked with them
(Brantlinger, Jimenez, Klingner, Pugach, & Richardson,
2005).
Participants
We purposefully selected young adults with a medical diagnosis of AS, all diagnosed under the Diagnostic and
Statistical Manual of Mental Disorders (4th ed.; DSM-IV;
American Psychiatric Association [APA], 1994) criteria
(prior to the publication of DSM’s fifth edition; DSM-5;
APA, 2013) who were eligible for special education services in high school and enrolled or planned to enroll in a
2- or 4-year college. Referral sources were (a) autism consultants for an education service district, (b) a vocational
rehabilitation counselor primarily serving clients with ASD,
and (c) a developmental pediatrician. Young adults with
diagnosed or suspected comorbid conditions (e.g., clinical
depression) or those unable or unwilling to acknowledge a
disability were ineligible. We used a structured screening
protocol to ensure potential participants met the study’s
inclusion criteria.
Young adults with AS. Participants were five young men ages
19 to 22 at the time of the first interview (see Table 1). They
lived in urban, suburban, and rural areas of a northwestern
state. Four identified as Caucasian and one identified as
multiple races. All five participants had a high school completion document at the time of the first interview; two
received a regular high school diploma, two completed the
54
Focus on Autism and Other Developmental Disabilities 34(1)
Table 1. Participant Demographic Information.
Name
Age at first interview
Age at ASD diagnosis
Initial diagnosis
Ethnicity
Diploma status
Brent
Hunter
Irvin
Jeff
Jorge
22
21
22
21
19
18
17
3
4
19
ADD/ADHD
ADD
PDD-NOS
ID
ADHD
Caucasian
Caucasian
Caucasian
Multiracial
Caucasian
Modified
GED
Regular
GED
Regular
Note. Per the American Psychiatric Association, “Anyone diagnosed with one of the four pervasive developmental disorders (PDD) from DSM-IV
should still meet the criteria for ASD in DSM-5 . . . ” ADD = attention deficit disorder; ADHD = attention deficit/hyperactivity disorder; PDD-NOS
= pervasive developmental disorder, not otherwise specified; ID = intellectual disability; ASD = autism spectrum disorder; DSM-IV = Diagnostic and
Statistical Manual of Mental Disorders (4th ed.).
General Educational Development (GED), and one received
a modified diploma.
Key informants. We obtained participants’ consent to interview individuals who could provide additional insights into
their family, high school, and college experiences. For each
participant, we interviewed (a) one or both parents, (b) a
high school teacher or transition specialist; and (c) for those
who received services from vocational rehabilitation, a
rehabilitation counselor who provided career counseling
and guidance.
Data Collection
Interview protocols. We developed semi-structured interview protocols utilizing key indicators identified in special
education (e.g., disability awareness, focus of Individualized Education Program [IEP]), transition (e.g., postschool
goals, self-advocacy/self-determination), and autism literature (e.g., communication, socialization, organization/executive functioning). The following major topics were
addressed in all interview protocols: (a) personal characteristics including strengths and interests, (b) family supports
and expectations, (c) high school experiences, and (d) college experiences including barriers and services accessed.
Interview procedures. We interviewed each participant and a
parent or family member twice, approximately 6 to 12
months apart. Participants had the option of having a parent
join them for the first interview; three young adults included
their parent in the first interview. The remaining parents
were interviewed individually. The initial interviews
focused on family background, high school, and early college experiences. We conducted the second interviews with
parents and participants separately. The second interviews
focused on recent changes in the participants’ lives and
individualized questions to clarify and follow up on information obtained in the first interviews. With participants’
permission, we interviewed a high school teacher or other
school staff and rehabilitation counselor to gain information
about their perceptions and experiences working with the
participants during the transition from high school to college. Across all five participants, we conducted 27 interviews. Interviews lasted 60 to 90 min and were audio
recorded and transcribed verbatim by a professional
transcriptionist.
Secondary sources. We completed a family background
questionnaire and obtained special education records when
available. Field notes documenting contact with participants and key informants were compiled and coded. All
field notes and file reviews were recorded on structured
forms to ensure comparable information across cases (Yin,
2009).
Data Analysis
We analyzed data following a multistage process (Bazeley,
2009; Miles, Huberman, & Saldaña, 2013). First, we simultaneously read the transcripts and listened to the audio files
to ensure accuracy in transcription, added descriptors (e.g.,
“said sarcastically”), or included field notes (e.g., turned
away as mom described his early behaviors). All transcripts
were entered into NVivo (Version 9) qualitative software
used for coding and analysis.
Next, we developed broad descriptive codes and definitions based on relevant literature, interview protocols, and
our initial read of the data. Using the descriptive codes (e.g.,
preparation for college, or social skills/socialization), we
assigned labels to individual passages of text. After reviewing an initial set of transcripts, the research team revised
and expanded the codes, adding key topics that emerged
from participant data. To ensure that interpretations were
not idiosyncratic or biased, coding was conducted in pairs
with the lead author coding all interviews. We did not
attempt to resolve coding differences. Instead, coders
reached initial agreement on the definition of each code,
and multiple codes were assigned to each passage of text to
allow for flexible, yet consistent, data interpretation
(Anfara, Brown, & Mangione, 2002).
In the third stage of analysis, we developed an in-depth
narrative profile for each participant using coded interview
Alverson et al.
data, field notes, and file review records. The profiles
included detailed descriptions of family, high school transition, and college experiences supported by direct quotes
from the data sources. After completing in-depth, participant profiles, we used explanatory methods to compare and
contrast common or unique qualities and experiences across
participants. Cross-case analysis was used to confirm patterns and document themes related to the transition to college (Bazeley, 2009; Miles et al., 2013).
Findings
Our interviews with young adults, parents, and service providers provided in-depth perspectives on the transition from
high school to college for five individuals with AS. All five
participants enrolled in college with varying degrees of success. Participants identified multiple challenges, especially
in the areas of social skills, communication, and executive
functioning skills. These challenges were evident in high
school and persisted into college settings. Our descriptive
findings are presented in three parts: (a) participant profiles,
including family status and initial disability diagnosis for
each participant, (b) high school and transition services, and
(c) early college experiences. We conclude the section with
a presentation of the cross-case themes that seemed to influence postsecondary enrollment and retention across cases.
Participant Profiles
Brent. Brent grew up with his mother and younger brother
in an urban community. Brent’s mom described his early
elementary years as difficult as he had intense temper tantrums: “Grade school was definitely something. We were
sent to somebody for a diagnosis on the average of once per
year.” He received several diagnoses in elementary school,
including attention deficit disorder (ADD) and attention
deficit/hyperactivity disorder (ADHD). As Brent aged, he
had difficulty with hygiene and organization. In sixth grade,
his mom enrolled him in a military school, where he thrived
within a system of structure and specific expectations. He
had high grades and followed the strict dress and hygiene
requirements. Brent attended a nonprofit, public, charter
high school. Although he continued to have an IEP, his
transition specialist described the nature of the charter
school as one in which “he was accepted into their community and they kind of tossed out all disability. He was just
sort of viewed as an individual.” During high school,
Brent’s IEP was based on eligibility for a specific learning
disability in written expression. Observations by the transition specialist led to an evaluation for ASD and a medical
diagnosis of AS at age 18. Having resisted previous diagnoses, his mom supported the AS diagnosis, “The Asperger’s
thing, the more I learned, the more I know it’s like uh huh,
the light bulbs! Oh, that explains it!”
55
Jeff. Jeff grew up with his mother after his parents divorced
when he was a young child. Jeff’s mom described knowing
early that he was not developing like other babies. She
noted he did not cry for food as her older son had, explore
his environment, or respond when his name was called. He
expressed strong preferences for certain textures on his
skin, sometimes refusing to wear clothes. When Jeff was
about 3 years old, a doctor suggested he had a mild intellectual disability (ID) and referred him to the school system
for evaluation. Mom indicated he was diagnosed as ID
based on initial testing. Jeff was diagnosed with ASD
around age 4. In the early elementary years, he had difficulty following directions, spoke with two-word utterances,
and exhibited aggressive behaviors especially when people
were “in his space.” When Jeff entered sixth grade, his mom
began homeschooling him, saying she worried that kids
would tease him and “[middle school] was just a different
environment and I just felt it was better that he would just
stay home.” Jeff was homeschooled via online programs
until age 18 when he enrolled in a post–high school transition program.
Hunter. Hunter grew up with elderly parents in a rural community. He was the youngest of five children. As a young
child, Hunter was given a variety of medications to control
his behavior. His mom described how some medications
made him hyper and some made him “like a zombie” until
she finally said, “no more medications.” In elementary
school, he was diagnosed with ADD and struggled to focus
and control his behavior; these years were not easy for
Hunter. He described some of the difficulties he had as “not
really concentrating on anything, or paying attention or caring. People described me as a tyrant. Pretty much every day
I wound up in the principal’s office daily for being in trouble, usually for doing something; usually hitting people.” In
fifth grade, Hunter was evaluated for special education services but was determined to be “too smart for help.” Midyear, his parents withdrew him from public school and
enrolled him in an online, homeschool program. He was
diagnosed with AS at the age of 17 by the developmental
pediatrician he was seeing for anger issues and depression.
Irvin. Irvin grew up with his parents and younger sister in an
urban community. His ...
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