Autism in law - Education
After reading Fong (2016) and Kornack, Cernius, & Persicke (2019), describe how you will become more culturally aware in your behavior analytic practice. Discuss how cultural competency will benefit your clients. Is it unethical if a behavior analyst does not develop cultural awareness skills? List all applicable ethics codes. Provide the rationale for the chosen code(s).
Behavior Analysis in Practice (2019) 12:879–886
https://doi.org/10.1007/s40617-019-00377-y
SPECIAL SECTION: DIVERSITY AND INCLUSION
The Diversity Is in the Details: Unintentional Language
Discrimination in the Practice of Applied Behavior Analysis
Julie Kornack1 & Ariana Cernius2 & Angela Persicke3
Published online: 9 August 2019
# Association for Behavior Analysis International 2019
Abstract
Individuals with limited English proficiency face more challenges accessing applied behavior analysis (ABA) than their English-
speaking counterparts. Many federal and state laws have been enacted to ensure the civil rights of protected classes, and
Section 1557 of the Affordable Care Act (ACA, 2010) builds on those laws and explicitly establishes a cause of action (i.e., a
basis to sue) against health care providers, including ABA providers, who discriminate against patients on the basis of race, color,
national origin, sex, age, or disability. A patient’s language falls under the scope of national origin, and most health care
providers, including behavior analysts who deliver ABA as medically necessary treatment, have a duty to ensure that patients
who are Limited English Proficient (LEP) have the same access to the provider’s services as English-speaking patients.
Knowledge of this provision of the ACA is critical to its compliance and, more importantly, to ensuring that behavior analysts
rise to the challenge that the goal of true diversity represents. Note: Many terms are used interchangeably to describe insurance
carriers, insurance issuers, health plans, and managed care organizations, as well as practitioners of applied behavior analysis. In
this article, insurance carriers, insurance issuers, health plans, and managed care organizations are referred to as payors, and
practitioners of applied behavior analysis are referred to as behavior analysts or ABA providers.
Keywords Applied behavior analysis, ABA . Autism, ASD . Affordable Care Act, ACA . Obamacare, Section 1557, diversity,
interpreter, health care, discrimination . LEP, Limited English Proficient
How we define diversity likely informs how we manifest it in
our lives and in the practice of behavior analysis. If diversity is
defined too narrowly or contemplated too briefly, unintention-
al discrimination may adversely impact access to health care
for patients with limited English proficiency, including indi-
viduals seeking access to applied behavior analysis (ABA).
Simply put, if an English-speaking patient can access ABA
services more easily than a non-English-speaking patient, then
a discriminatory practice is likely in place. Ensuring diversity
in the practice of health care, including ABA, is especially
This manuscript has not been previously published and has not been or
will not be submitted elsewhere during the review process.
* Julie Kornack
[email protected]
1 Center for Autism and Related Disorders, 21600 Oxnard Street, 18th
Floor, Woodland Hills, CA 91367, USA
2 Bet Tzedek Legal Services, Los Angeles, CA, USA
complex, replete with ethical and practical implications for
patient access to care, best practices, and provider
sustainability.
The field of ABA and the population it serves have histor-
ically endured discrimination to such an extent that nonprofit
organizations, advocacy groups, bodies of law, and even re-
search exist purely to ensure that people who need ABA have
access to it (Unumb & Unumb, 2011). With a focus on indi-
vidualized, data-driven treatment, goals, and priorities to ad-
dress each patient’s unique challenges and deficits, behavior
analysis would seem inherently diverse; yet, data show that
individuals who are limited English proficient (LEP) access
ABA later, less often, and for shorter durations than their
English-speaking counterparts (Zuckerman et al., 2017).
LEP is defined to include “individuals who do not speak
English as a primary language and who have a limited ability
to read, speak, write, or understand English” (LEP.gov, n.d.).
The percentage of LEP families varies broadly from state to
state and from one community to the next. Yu and Singh
(2009) report that nearly 14\% of children come from house-
Pepperdine University, Malibu, CA, USA holds where the primary language is not English. Patients and 3
http://crossmark.crossref.org/dialog/?doi=10.1007/s40617-019-00377-y&domain=pdf
http://orcid.org/0000-0003-1446-727X
mailto:[email protected]
https://doi.org/10.1007/s40617-019-00377-y
880 Behav Analysis Practice (2019) 12:879–886
their families who speak English are likely to encounter fewer
barriers to accessing ABA. This more challenging access for
LEP families raises important questions about which practices
currently in place may be discriminatory and draws attention
to potential legal and ethical issues for ABA providers.
Given that patients who receive ABA earlier, at greater
intensity, and for a longer duration are more likely to have
better outcomes (Eikeseth, Smith, Jahr, & Eldevik, 2007;
Granpeesheh, Dixon, Tarbox, Kaplan, & Wilke, 2009;
Linstead et al., 2017; Virues-Ortega, Rodríguez, & Yu,
2013), equal access to ABA across all demographics is not
only a requirement under federal law (Affordable Care Act
[ACA], 2010) but also an important goal in the effort to ad-
vance diversity in ABA among providers and patients alike.
The next frontier, in other words, is to ensure that access to
ABA is the same for both English-speaking and LEP
populations.
Although ABA is used to treat a variety of diagnoses, a
majority of behavior analysts treat the behaviors and deficits
associated with the core diagnostic criteria of autism spectrum
disorder (ASD), and predictions for growth in the field of
ABA rely on the preservation and expansion of autism insur-
ance reform laws and on data regarding autism prevalence
rates (Deochand & Fuqua, 2016). As such, this discussion
about ABA providers in the context of a benefit covered by
health insurance and Medicaid is primarily—and necessari-
ly—focused on access to ABA by individuals diagnosed with
ASD and their families.
Disparity in Access to ABA
Autism insurance reform, the ACA, and clarification that
ASD treatment is a covered benefit for Medicaid’s pediatric
population have collectively increased access to ABA (ACA,
2010; Cernius, 2016; Mann, 2014;). Yet, families frequently
face practical barriers to accessing ABA therapy programs for
their children despite their legal right to coverage. Many of the
barriers experienced by patients (e.g., lack of insurance,
excessive cost sharing, difficulty understanding and nav-
igating the health care system, provider shortages) are
not typically within the control of an ABA provider.
Once a patient contacts an ABA provider, though, fed-
eral law mandates that the patient must be able to com-
municate with the behavior analyst and his or her staff
regardless of the patient’s language (ACA, 2010).
Indeed, Yu and Singh (2009) cited “linguistically concor-
dant providers” and access to interpreters as two potential
variables that may increase access to medically necessary
treatment for children from LEP homes. Zuckerman et al.
(2017) identified English proficiency as a significant variable
in access to autism treatment in Spanish-speaking families,
meaning that LEP families encounter more barriers to
treatment than their English-speaking counterparts. In a retro-
spective review of 152 children with ASD, St. Amant,
Schrager, Pena-Ricardo, Williams, and Vanderbilt (2018)
identified language as a potential barrier to health care for
children in the study whose parents’ primary language was
not English.
Role of Behavior Analysts in Ensuring
Equitable Access to ABA
With increasing recognition of the effectiveness of ABA and
the growing prevalence rate of ASD (Baio et al., 2018), be-
havior analysts may find themselves with an abundance of
prospective patients. Indeed, behavior analysts qualified to
treat ASD are in short supply (Behavior Analyst
Certification Board, 2018). That abundance of patients may
make it less likely for a behavior analyst to have a practice that
reflects his or her community demographics. For example, if a
behavior analyst only speaks English, then she or he may be
inclined to treat only those patients who speak English and
may very well build a successful practice serving only
English-speaking patients. That is, ASD’s high prevalence
rate may contribute to a process in which ABA providers have
the option to be selective about the patients they treat. Yet,
what may be viewed by an ABA provider as an efficient
business practice or professional focus may, in fact, be dis-
crimination, both in the eyes of the federal government and in
the experience of the LEP community.
Quite possibly, in an effort to comply with the
Behavior Analyst Certification Board’s Professional
and Ethical Compliance Code for Behavior Analysts
(2017, Code 1.05[b–c]), a behavior analyst who encoun-
ters an LEP patient may determine that she or he is
unable to “use language that is fully understandable to
the recipient of those services while remaining concep-
tually systematic with the profession of behavior analy-
sis” or obtain the appropriate “training, experience, con-
sultation, and/or supervision necessary to ensure the
competence of their services” and will refer the patient
to another provider. An ABA provider may view this
practice as an effort to honor the compliance code, but
Section 1.05(d) of the compliance code clearly states
that behavior analysts may not “engage in discrimina-
tion against individuals or groups based on . . . national
origin . . . or any basis proscribed by law.” Behavior
analysts should take necessary steps to understand their
responsibility to ensure that patients who seek medically
necessary ABA have equitable access to treatment, irre-
spective of their primary language. In addition to the
clear ethical duty to provide such access, most behavior
analysts are required by law to take proactive steps to
ensure equitable access to the services they provide.
881 Behav Analysis Practice (2019) 12:879–886
Overview of the ACA and Section 1557
In 2010, Congress passed the Patient Protection and
Affordable Care Act and, shortly after, the Health Care and
Education Reconciliation Act of 2010. Together, these acts
became known as the Affordable Care Act (ACA), commonly
known as Obamacare, setting in motion a major overhaul of
the health insurance system in America, with many implica-
tions for health care and insurance coverage (Unumb &
Unumb, 2011). Section 1557 is the nondiscrimination provi-
sion of the ACA that extends nondiscrimination protections to
individuals in accessing health care by building upon long-
standing and well-known federal civil rights laws, such as
Title VI of the Civil Rights Act of 1964, which prohibits
discrimination on the basis of race, color, and national origin;
Title IX of the Education Amendments of 1972, which pro-
hibits discrimination on the basis of sex; Section 504 of the
Rehabilitation Act of 1973, which prohibits discrimination on
the basis of disability; and the Age Discrimination Act of
1975, which prohibits discrimination on the basis of age
(Department of Health and Human Services [HHS] Office
for Civil Rights, 2016). Section 1557 is meant to advance
and protect the ACA’s goals of widening access to health care
and coverage, eliminating barriers, and reducing health dis-
parities (HHS Office for Civil Rights, 2016). By creating new
obligations for covered health care providers and payors to
ensure that people have equitable access to health care ser-
vices and do not face discrimination, Section 1557 extends
the protections of civil rights laws to the U.S. health care
system (Seng, Jakubowski, & Compton-Brown, 2016).
In relevant part, Section 1557 provides that
an individual shall not . . . be excluded from participa-
tion in, be denied the benefits of, or be subjected to
discrimination under, any health program or activity,
any part of which is receiving Federal financial assis-
tance, or under any program or activity that is adminis-
tered by an Executive Agency or any entity established
under Title I of the Act or its amendments.
(Nondiscrimination in Health Programs and Activities,
Final Rule, 2016)
In simpler terms, under Section 1557, most health pro-
grams and activities, including most medically necessary
ABA, are prohibited from discriminating on the basis of race,
color, national origin, sex, age, or disability (HHS Office for
Civil Rights, 2016).
Although Section 1557 has always existed as part of the
ACA law that was passed in 2010, implementing regulations
were not finalized until 2016, extending the principle of non-
discrimination to health care and health insurance. In
May 2016, HHS issued a rule describing precisely what cov-
ered providers must do in order to comply with Section 1557
(Seng et al., 2016). These regulations, t i tled
“Nondiscrimination in Health Programs and Activities, Final
Rule” and found at 42 CFR Part 92, became effective on
July 18, 2016, and offer guidance as to which populations
are protected under Section 1557, which health care providers
are required to comply and how they may do so, and the
various remedies individuals may seek if they experience dis-
crimination from covered entities.
Understanding Section 1557 and Its
Relevance to ABA
The first step to understanding the impact of Section 1557 of
the ACA is to understand which ABA providers are covered
under its command. Section 1557 applies to all health pro-
grams and activities that receive federal financial assistance
from HHS and that are administered by HHS or by entities
created under Title I of the ACA (HHS Office for Civil Rights,
2016; Nondiscrimination in Health Programs and Activities,
Final Rule, 2016). Essentially, ABA providers who participate
to any extent in federally funded programs (e.g., TRICARE,
Medicaid, managed care organizations administering
Medicaid benefits, most commercial plans, etc.) are subject
to Section 1557 and are required to comply with its nondis-
criminatory mandate.
Although the autism community recognized early on that
Section 1557’s nondiscrimination provisions have great po-
tential to eliminate age discrimination in the funding of
ABA-based treatment, resources to increase awareness of pro-
vider responsibilities under Section 1557 have not been wide-
ly disseminated in the field of ABA (Lello, 2015).
Compliance with Section 1557 requires thoughtful planning,
development of new policies and procedures, employee edu-
cation and training, and implementation of an ongoing com-
pliance program. Additionally, the costs associated with com-
pliance with Section 1557 should be contemplated when ABA
providers contract with payors to provide services. As the
population seeking ABA grows, ABA providers should be
conscious of the linguistic diversity that exists within the pa-
tient base they serve and of any duties they may have to
improve the accessibility of their services to LEP families,
whom the law incorporates and protects under the category
of national origin.
Compliance
The Section 1557 provision outlines clear guidance and spe-
cific steps to help covered providers deliver health care to the
populations they serve in a way that is equitable and nondis-
criminatory. Under Section 1557, a covered provider may not
“segregate, delay or deny services or benefits based on an
http:parities(HHSOfficeforCivilRights,2016).By
882 Behav Analysis Practice (2019) 12:879–886
individual’s race, color or national origin, or delay or deny
effective language assistance services to individuals with lim-
ited English proficiency (LEP)” (HHS Office for Civil Rights,
2016; Nondiscrimination in Health Programs and Activities,
Final Rule, 2016). Covered providers, including ABA pro-
viders, have a duty to take reasonable steps to provide “mean-
ingful access” to care and coverage for each individual with
LEP who is eligible to be served or likely to be encountered in
their health programs and activities (Nondiscrimination in
Health Programs and Activities, Final Rule, 2016).
Examples of reasonable steps include the provision of lan-
guage assistance services, such as oral-language assistance
or written translations (HHS Office for Civil Rights, 2016).
Given the importance of complying with
Section 1557, both to serve the diverse population that
comprises those seeking ABA therapy and to avoid trig-
gering the legal ramifications of violating this nondis-
crimination provision, it is critical for covered ABA
providers to understand the steps that must be taken to
comply with the law. To meet the language access re-
quirements to communicate with families who are LEP,
covered entities must:
& provide oral interpretation and written translation services
at no cost to the individual and in a timely manner
(Nondiscrimination in Health Programs and Activities,
Final Rule, 2016; Schuh, 2017);
& adhere to certain quality standards in delivering language
assistance services—for instance, a covered entity may
not require an individual to provide his or her own inter-
preter; rely on a minor child to interpret, except in a life-
threatening emergency where there is no qualified inter-
preter immediately available; rely on interpreters that the
individual prefers when there are competency, confidenti-
ality, or other concerns; rely on unqualified bilingual or
multilingual staff; or use low-quality video remote
interpreting services (HHS Office for Civil Rights, 2016;
Nondiscrimination in Health Programs and Activities,
Final Rule, 2016; Schuh, 2017);
& post notices of nondiscrimination in offices, on websites,
and in any significant publications and communications
(Center for Medicare and Medicaid Services, 2016;
Nondiscrimination in Health Programs and Activities,
Final Rule, 2016); and
& post translated taglines (short statements in non-English
languages spoken in the state in which the entity is located
or conducts business) in significant publications and post
in prominent locations and on its website, indicating
the availability of language support services (Center
for Medicare and Medicaid Services, 2016; HHS
Office for Civil Rights, 2016; Nondiscrimination in
Health Programs and Activities, Final Rule, 2016;
Schuh, 2017).
Additionally, covered providers who have 15 employees or
more must:
& appoint or hire a Section 1557 compliance coordinator to
carry out the provider’s compliance efforts and responsi-
bilities, including the investigation of any grievance com-
municated to it alleging noncompliance with Section 1557
(Nondiscrimination in Health Programs and Activities,
Final Rule, 2016); and
& adopt grievance procedures that provide for the prompt
and equitable resolution of grievances alleging violations
of Section 1557 (Nondiscrimination in Health Programs
and Activities, Final Rule, 2016).
Sample notices, taglines, and other materials drafted by the
HHS Office of Civil Rights (OCR) are included in the appen-
dices following the regulations 42 CFR Part 92.
If ever a question is raised about a covered provider’s com-
pliance with Section 1557, many factors are taken into con-
sideration to determine whether the provider has met its obli-
gations, such as the “nature and importance of the health pro-
gram or activity and the particular communication at issue to
the individual with [LEP],” whether the provider has “devel-
oped and implemented an effective written language access
plan that is appropriate to its particular circumstances,” and
whether the provider has demonstrated an effort to meet its
obligations to take reasonable steps to provide meaningful
access to LEP families (Nondiscrimination in Health
Programs and Activities, Final Rule, 2016). With this in mind,
ABA providers should evaluate their compliance with
Section 1557 and make adjustments as necessary.
Consequence of Noncompliance
Covered ABA providers should be aware of the consequences
of noncompliance with Section 1557. Section 1557 explicitly
establishes a cause of action (i.e., right to sue) against health
care entities, including ABA providers, who discriminate
against patients on the basis of race, color, national origin,
sex, age, or disability (Rosenbaum, 2016). If an individual ex-
periences discrimination in accessing health care services by a
health care provider or insurer covered by Section 1557, the law
affords him or her several remedies, including (a) pursuing a
civil suit against the covered provider, (b) reporting instances of
discrimination by a covered provider to the OCR for investiga-
tion, (c) having the OCR revise the policies and procedures of
the covered provider, (d) requiring the covered provider to pay
compensatory damages to the individual who experienced dis-
crimination, (e) suspending or terminating federal financial as-
sistance allotted to providers who refuse to take corrective ac-
tion, and/or (f) referring the covered provider to the U.S.
Department of Justice for further enforcement action (HHS
883 Behav Analysis Practice (2019) 12:879–886
Office for Civil Rights, 2016; Nondiscrimination in Health
Programs and Activities, Final Rule, 2016).
Costs Associated with Section 1557
In addition to administrative costs, the primary cost arising
from the effort to ensure equal access to ABA for LEP families
is the cost of the interpreter, but whether the provider or payor
is responsible for that cost can depend on a number of vari-
ables, including the state where the services are delivered, the
funding source, and the inclination of the payor to incentivize
providers to make their services accessible to the payor’s LEP
population (Jacobs, Shepard, Suaya, & Stone, 2004;
Nondiscrimination in Health Plans and Activities, Final
Rule, 2016). Both the behavior analyst and the payor have a
duty to ensure that patients can access treatment regardless of
their primary language. In many instances, payors will provide
access to an interpreter service when the health care provider
requests it. Prior to identifying a patient’s funding source,
however, behavior analysts should be prepared to communi-
cate with prospective LEP patients.
Therefore, employees who initially communicate with pro-
spective patients or their families should be trained and
equipped to communicate with and collect information from
English-proficient and nonproficient patients alike at the ABA
provider’s expense. Once a patient’s funding source is identi-
fied, the cost of the interpreter may shift to the payor.
Importantly, though, the failure of a payor to provide an inter-
preter does not relieve the behavior analyst of the duty to ensure
equal access to ABA by LEP patients and their families.
HHS makes clear that its preference is for the cost of the
interpreter to be borne by the payors but stops well short of
imposing any sort of requirement on the payors to bear that cost.
In the Final Rule implementing Section 1557, HHS reminds
payors that the ACA requires qualified health plans to incentivize
providers for “the implementation of activities to reduce health
and health care disparities, including through the use of language
services” (Nondiscrimination in Health Programs and Activities,
Final Rule, 2016). HHS goes on to encourage payors to “con-
sider health care providers’ expenses in providing language as-
sistance services” when structuring reimbursement rates.
State Medicaid agencies have the option of securing
matching federal funds for the cost of the interpreter, but the
National Health Law Program (NHeLP) reports that only 14
states and the District of Columbia appear to have taken advan-
tage of this resource, including Connecticut, Iowa, Idaho,
Kansas, Maine, Minnesota, Montana, New Hampshire, New
York, Texas (sign language interpreters only), Utah, Vermont,
Washington, and Wyoming (Youdelman, 2017). Additionally,
Arizona Medicaid explicitly requires the managed care organi-
zations administering its Medicaid benefit to pay for the inter-
preter (Arizona Health Care Cost Containment System
[AHCCCS], 2017). Anecdotally, providers report state
Medicaid agencies, in addition to those identified by NHeLP,
as providing access to interpreter services funded by the state or
managed care organization contracting with the state to deliver
the Medicaid benefit, including California, Colorado,
Louisiana, Michigan, Minnesota, Oregon, and Washington.
Behavior analysts who contract with payors as in-network
providers should address Section 1557 requirements in the
contracting process to ensure that reimbursement rates reflect
the projected cost of providing services to the payor’s benefi-
ciaries in compliance with Section 1557. Although all patients
who require an interpreter must have access to an interpreter
when contacting their payor, the process to sustain that access
continues to evolve as health care providers seek guidance
from the payors and become more familiar with their respon-
sibilities under Section 1557.
Considerations
Section 1557 is replete with positive implications for ensuring
equitable access to ABA across diverse populations.
Compliance with Section 1557 requires providers to take spe-
cific steps (see Appendix Table 1). Even so, as the field of
behavior analysis endeavors to comply with Section 1557,
existing and new processes and procedures should be evalu-
ated to ensure that best practices are not diluted.
Length of Visit with Interpreter Involvement
Several studies evaluate the increased duration of clinic visits
associated with the use of an interpreter and report minimal to
no increase in visit length (Fagan, Diaz, Reinert, Sciamanna,
& Fagan, 2003; Jacobs, Ryan, Henrichs, & Weiss, 2018).
Behavior analysts who use interpreters for assessment,
parent/caregiver training, or one-to-one ABA may be in a
position to collect and disseminate data specific to the use of
interpreters in the delivery of ABA to help the field identify
whether the use of an interpreter significantly extends the
duration of a service. To ensure that LEP patients have access
to the same intensity of treatment as their English-proficient
counterparts, ABA providers may want to seek additional
hours or flexibility from payors to avoid inadequate treatment
authorizations. Additionally, the need for interpreters may be
minimized if ABA providers undertake intentional efforts to
hire and train individuals who reflect the cultural and linguis-
tic diversity of the community in which they practice.
Separate Billing Codes and Modifiers
If the payor has agreed to pay for the interpreter, ABA pro-
viders should be cognizant of billing codes and modifiers
associated with the interpreter activity to ensure proper claims
http:service.To
884 Behav Analysis Practice (2019) 12:879–886
submissions and timely reimbursement. If the cost of the in-
terpreter is borne by the provider, providers may want to ask
their accountants to check for tax subsidies and/or tax credits
that may be available for such expenditures.
Medically Unlikely Edits
Medically Unlikely Edits (MUEs), developed by CMS for
most billing codes to reduce the number of erroneously paid
claims, set the likely number of units for each billing code in a
day (Center for Medicare and Medicaid Services, 2018). An
MUE is the maximum number of units that a provider is likely
to report for one patient in one day. Interpreter services should
not be counted toward the MUEs for the billable service that
requires the interpreter. If payors do not offer a separate billing
code or modifier for the interpreter service, ABA providers
should be alert to the possibility of rejected claims that require
an appeal and the delay associated with such a process. MUEs
should not be used to limit medically necessary treatment,
regardless of the language status of the patient.
Rate Negotiations
Rate negotiations should be undertaken only with a full un-
derstanding of whether the payor or provider is financially
responsible for the interpreter and translation of medical re-
cords and forms, where necessary. Staff training, interpreter,
translator, and development of materials represent some of the
costs that should be contemplated when negotiating rates. If
the cost of the interpreter is not explicitly denoted in the con-
tract, seek clarification and update the contract to reflect any
clarification provided. Absent sufficient rates or clarification,
providers should be wary of contracts that do not allow them
to make informed decisions that ensure the sustainability of
their ABA practice.
Conclusion
The realm of health care is an area where lack of diversity is
particularly visible, often because the serious consequences
that arise from inadequate access to quality health care ser-
vices have measurable deleterious effects for years to come.
As ABA providers increasingly comply with the requirements
of Section 1557, access to ABA is likely to become more
equitable and more likely to reflect the diversity of the …
Behav Analysis Practice (2016) 9:84–94
DOI 10.1007/s40617-016-0111-6
DISCUSSION AND REVIEW PAPER
Developing the Cultural Awareness Skills of Behavior Analysts
Elizabeth Hughes Fong1 & Robyn M. Catagnus2 & Matthew T. Brodhead3 &
Shawn Quigley4 & Sean Field5
Published online: 4 February 2016
# Association for Behavior Analysis International 2016
Abstract All individuals are a part of at least one culture.
These cultural contingencies shape behavior, behavior that
may or may not be acceptable or familiar to behavior analysts
from another culture. To better serve individuals, assessments
and interventions should be selected with a consideration of
cultural factors, including cultural preferences and norms. The
purpose of this paper is to provide suggestions to serve as a
starting point for developing behavior analysts’ cultural
awareness skills. We present strategies for understanding be-
havior analysts’ personal cultural values and contingencies
and those of their clients, integrating cultural awareness
practices into service delivery, supervision, and professional
development, and becoming culturally aware in everyday
practice.
Keywords Culture . Cultural awareness . Applied behavior
analysis . Diversity
Skinner (1953) defined culture as variables Barranged by other
people^ (p. 419). That is, humans control contingencies of
Elizabeth Hughes Fong, Robyn M. Catagnus, and Matthew T. Brodhead
shared first author
* Robyn M. Catagnus
[email protected]
1 Arcadia University, Glenside, PA, USA
2 The Chicago School of Professional Psychology, Chicago, IL, USA
3 Purdue University, West Lafayette, IN, USA
4 The University of New Mexico Medical Group, Albuquerque, NM,
USA
5 Western Michigan University, Kalamazoo, MI, USA
reinforcement and punishment that affect the behavior and
learned reinforcers and punishers of a person or a group of
people. Culture may be further defined as Bthe extent to which
a group of individuals engage in overt and verbal behavior
reflecting shared behavioral learning histories, serving to dif-
ferentiate the group from other groups, and predicting how
individuals within the group act in specific setting conditions^
(Sugai et al. 2012, p. 200). Distinguishable stimuli and re-
sponse classes that occur in cultures include race, socioeco-
nomic class, age, religion, sexual orientation, ethnicity, dis-
ability, nationality, and geographic context (Sugai et al.
2012). An individual’s unique set of distinguishable stimuli
and response classes are collectively referred to as an individ-
ual’s cultural identity. One benefit of determining cultural
identity is it can allow behavior analysts to develop an aware-
ness of a client’s personal cultural values, preferences (i.e.,
learned reinforcers), characteristics, and circumstances
(contingencies at the third level of selection; Skinner 1981).
There are possible benefits for society, too, such as to better
guide assessment and intervention practices. By acknowledg-
ing the importance of culture, behavior analysts can help
achieve socially meaningful goals such as reducing disparities
in access to services and improving the quality of services
for diverse populations in behavioral health systems
(U.S. Department of Health and Human Services 2001).
Culturally aware behavior analysts should understand their
own cultural values, preferences, characteristics, and
circumstances and seek to learn about those of their clients.
That is, behavior analysts should be aware about their own
personal biases and how they compare to and may affect their
relationship with their client. This awareness of both self and
clients may be important because, as Spring (2007) suggests,
evidence-based services require a combination of clinical ex-
pertise and knowledge of the client’s preferences and learning
histories. Behaviorally, cultural awareness may be defined as
http://crossmark.crossref.org/dialog/?doi=10.1007/s40617-016-0111-6&domain=pdf
mailto:[email protected]
http:skills.We
85 Behav Analysis Practice (2016) 9:84–94
the discriminated operant of tacting contingencies of rein-
forcement and punishment administered by a group of indi-
viduals. In other words, a behavior analyst who is culturally
aware is able to identify the reinforcement and punishment
contingencies that have been established by themselves, their
colleagues, their family, and any other social group they may
belong to or identify with. Behavior analysts’ ability to tact
contingencies for self and others may facilitate development
of a behavior change program that is informed by their clients’
specific cultural contingencies.
Further, cultural awareness may be important because be-
havioral patterns that are viewed as problematic in our own
culture may be the norm in other cultures (Goldiamond 2002;
Vandenberghe 2008). Consider the following example of a
child who was referred for a functional assessment for
Bwithdrawn^ behavior. The behavior analyst and a special
education observed the student became Bwithdrawn^ after re-
ceiving verbal praise. In fact, the student ultimately stopped
engaging in any appropriate behavior which lead to the verbal
praise. While collaborating with the family to gather data dur-
ing the functional assessment, they determined that the stu-
dent’s Bwithdrawn^ behavior occurred because of child’s lack
of comfort with receiving individual attention. In the child’s
culture, the whole (i.e., community) comes before the individ-
ual. However, neither the behavior analyst nor the special
education teacher questioned their personal assumption that
the behavior is inappropriate for the classroom or their prefer-
ences about how children should act after receiving praise.
Because the student’s withdrawn behavior is maintained by
a lack of attention, the behavior analyst and special education
teacher suggest administering praise privately. In this case,
their lack of understanding about how the cultural contingen-
cies support the client’s Binappropriate behavior^ may have
resulted in a treatment recommendation that was incongruent
with cultural values. However, a culturally aware intervention,
which seeks understanding of client values, characteristics,
preferences, and circumstances would honor the client’s cul-
ture and allow the client to successful in a given environment.
A thorough behavior analytic intervention may be effective
with individuals across various cultures (Kauffman et al. 2008;
Tanaka-Matsumi et al. 1996). However, skilled, thorough, and
well-trained behavior analysts may not always consider client
culture. When assessing an individual’s or a group’s behavior,
behavior analysts often collect data about motivating opera-
tions, antecedents, behaviors, and consequences. However,
common functional assessment data collection strategies and
interview forms may not thoroughly explore cultural prefer-
ences and norms. Behavior analysts may consider the intersec-
tion of a cultural and linguistic context with the terms, concepts,
and science of behavior analysis (Jones and Hoerger 2009). It is
possible that, without information about cultural preferences
and norms, behavior analysts may unintentionally provide less
than optimal service delivery.
Consider an example of a behavior analyst who provided
in-home and community services to the family of a child with
severe autism. The family, to whom church is very important,
attended a weekly three hour church service. The behavior
analyst, who did not attend church and was not a religious
person, failed to inquire in detail about the family’s and child’s
experience at church. Eventually, the family specifically asked
the behavior analyst to teach the child the necessary skills to
participate in the church service. However, the behavior ana-
lyst still did not assign a high priority to teaching the child the
skills needed for successful church attendance. The behavior
analyst’s choices demonstrated a lack of understanding of the
client’s values, characteristics, preferences, and circum-
stances. In contrast, a culturally aware behavior analyst may
be aware that Bthe selection of target behaviors is an expres-
sion of values^ (Kauffman et al. 2008, p. 254) and that paren-
tal expectations of children are likely controlled by cultural
contingencies (Akcinar and Baydar 2014).
In addition to the previous two examples, being culturally
aware may also increase the probability that behavior analysts
will engage in behaviors that are socially acceptable to people
from diverse cultural backgrounds. These behaviors include
selecting culturally appropriate treatments (see Rispoli et al.
2011), recognizing that Bparenting styles that are culture spe-
cific could lead to distinct behavioral consequences for a
child^ (Akcinar and Baydar 2014, p. 119), and implementing
culturally appropriate language acquisition programs (see
Brodhead et al. 2014). Cultural awareness could also ensure
that behavior analysts treat service delivery as Balways a two-
way street^ (Bolling 2002), meaning that the relationship be-
tween the behavior analyst and the stakeholders should in-
clude input about what cultural contingencies and values
may contribute to an effective relationship and intervention.
Finally, increasing cultural awareness may also decrease
the probability of behavior analysts expecting the clients they
serve to conform to their own cultural and scientific values
and contingencies. The science of applied behavior analysis
(ABA) is a unique cultural system (see Glenn 1993). Given
that the science of ABA inherently embodies a certain set of
values such as a Westernized model of science and health care,
the cultural values and contingencies of ABA may not always
align with those of the client. As Bolling (2002) noted,
It is difficult for people in the US cultural mainstream,
including researchers, to believe that there are any assump-
tions other than their own about how the world works,
what a ‘person’ is, how we function, how time works, what
feelings are, how to use language, what the goal of life is,
how people interrelate, [and] how and where it is appro-
priate to show feelings or to seek help. (p. 22)
Awareness of cultural differences and similarities may al-
low for programmatic modifications that result in more
86 Behav Analysis Practice (2016) 9:84–94
culturally appropriate models of behavior analytic service
delivery.
In summary, there may be many important reasons for be-
havior analysts to develop cultural awareness skills.
Although there is a growing interest in conceptual (e.g.,
Brodhead et al. 2014; Fong and Tanaka 2013) and applied
strategies for administering behavioral interventions for cli-
ents from diverse cultural backgrounds (e.g., Padilla
Dalamau et al. 2011; Rispoli et al. 2011; Washio and
Houmanfar 2007), there is little guidance concerning how
practicing behavior analysts can become culturally aware or
further develop that awareness. Therefore, guidance on how to
become culturally aware may be an important resource for
behavior analysts.
The purpose of this paper is to offer suggestions that can
serve as a starting point for how behavior analysts may further
increase their cultural awareness. We believe that cultural
awareness, as described herein, reflect Baer et al. (1968) state-
ment that the Bbehavior, stimuli and/or organism under study
are chosen because of their importance to man and society^
(p. 92). Individuals participating in behavior change programs
and those who provide significant support for them should
determine what is important to them, to their society, and to
their culture. In this paper, we discuss strategies for under-
standing a client’s cultural values and contingencies, as well
as those of the behavior analyst. Then, we describe strategies
for embedding cultural awareness practices into behavior an-
alytic service delivery, supervision, and professional develop-
ment. Finally, we conclude with additional discussion and
considerations for becoming culturally aware in everyday
practice.
Strategies for Developing Cultural Awareness
The following two sections describe how behavior analysts
can become more aware of personal cultural values and con-
tingencies and how they can develop skills to learn about their
clients’ cultural identities. We will refer to cultural values and
contingencies as the cultural system, except where values or
contingencies play an independent role in our analysis of de-
veloping cultural awareness. We will refer to cultural identity
as characteristics that extend beyond individual differences to
those traits that members of a given culture share with one
another (Adler 1998). For example, an individual from Africa
may express their cultural identity through their belief struc-
ture, attire, foods eaten, or hair style. Even though this indi-
vidual might identify as African, there are subcultures to
which they might further identify with. Our suggestions are
meant to serve as a starting point for furthering a behavior
analytic understanding of cultural awareness and how that
awareness can be integrated and improved upon in everyday
practice. It is recommended that behavior analysts
concurrently engage in cultural awareness practices
concerning their own behavior as well as those of their clients.
It is important to be aware of one’s own biases or
preconceived notions as a behavior analyst, as well acknowl-
edging limitations in one’s cultural knowledge. Lastly, our
suggestions are not intended to result in a rigid set of rules
or practices. Rather, our hope is the suggestions will lead to
broad practices that develop and continually refine cultural
awareness, which will hopefully allow behavior analysts to
be more open and flexible to the various cultures that will be
experienced. Openness and flexibility in the presence of var-
ious cultures will hopefully result in better outcomes for those
we serve.
Developing Cultural Awareness of Self
From a behavior analytic perspective, self-awareness can be
defined as verbal discrimination of our own behavior (Barnes-
Holmes et al. 2001). Sugai et al. (2012) describe culture as
common behaviors related by comparable learning histories,
social and environmental contingencies, contexts and stimuli,
so self-awareness might also include verbal discrimination of
these aspects of personal experience. An understanding of our
own cultural system may be an important first step toward
correcting biases that affect our interactions with others
(Lillis and Hayes 2007). The American Psychological
Association’s (APA) (2003) multicultural guidelines encour-
age clinicians to Brecognize that, as cultural beings, they may
hold attitudes and beliefs that can detrimentally influence their
perceptions of and interactions with individuals who are eth-
nically and racially different from themselves^ (p. 382).
Developing self-awareness may prevent our biases from im-
peding how we serve culturally diverse clients.
One strategy to enhance cultural self-awareness is talking
about our diverse client interactions with a professional com-
munity in group discussions, written forums, journals, men-
torship meetings, verbal feedback sessions, or self-reflective
exercises (Tervalon and Murray-Garcia 1998). Skinner (1974)
emphasized the relationship between self-awareness and con-
trol over our own behavior,and proposed that talking about
our behavior is how we achieve self-awareness. Recent be-
havior analytic research indicates that when individuals ver-
bally describe their own behavior, the behavior may change
(Tourinho 2006). Discussion with mentors and colleagues
may help behavior analysts learn about themselves and also
change their cross-cultural interactions for the better.
Another suggestion is to be Bmindful^ by attending fully
and alertly, in the moment, to client interactions and our own
private events, without judging or evaluating the events as
they occur (Bishop et al. 2004; Hayes and Plumb 2007;
Vandenberghe 2008). We recommend practitioners hone their
ability to attend closely to clients and self, in context, for two
reasons related to self-awareness. First, such attention may
http:awareness.We
87 Behav Analysis Practice (2016) 9:84–94
help enhance skills of self-observation and self-description
regarding our overt and covert behavior. Also, while we can
remain committed to overtly behaving in ways consistent with
values of multiculturalism, even in the presence of values and
contingencies that create bias, mindfulness may reduce the
biases that produce thoughts, feelings, and reactions to cultur-
ally diverse people (Lillis and Hayes 2007). Attending closely
to our clients and being active and alert is good practice for
building rapport, too.
Clinicians can engage in more culturally aware practice by
assessing, collecting data, and testing hypotheses rather than
accepting their own experiences and biases as the norm (Sue
1998). Scientific mindedness is a characteristic of clinicians
and human service providers who develop theories about cli-
ent behaviors by analyzing data rather than by dependence on
their personal assumptions (Sue 1998), and may reduce bias
and foster better understanding of client behavior. A reliance
on scientific, behavior analytic knowledge when working with
clients is also required by the Professional and Ethical
Compliance Code for Behavior Analysts (BACB 2015).
While mindful attention focuses on the interaction between
the behavior analyst and the client/family, scientific minded-
ness is a focus on interpreting information from the client and
family; both characteristics facilitate culturally aware practice.
For example, a behavior analyst consults to a family of a child
with a sleep disorder, and learns that the mother sleeps in her
five-year-old child’s bed while the father sleeps in a larger
room, alone. The practitioner may notice, and be able to co-
vertly tact, that this is not the norm of the cultural majority nor
congruent with his personal experience or values. The analyst
may assume that the mother should not sleep in the child’s bed
or notice thoughts of judgment he feels. Lillis and Hayes
(2007) recommend practitioners accept that such reactions
may be normal, given our cultural systems and the human
tendency to evaluate, but remain committed to acting positive-
ly based on our values. Through a process of assessment and
covert verbal behavior, the practitioner might accept the co-
sleeping arrangement to be culturally appropriate for and pre-
ferred by the family, and choose to develop an intervention
that keeps the arrangement in place. A blend of both self-
awareness and reliance on scientific knowledge is likely to
produce the most culturally aware assessment and
intervention.
Finally, there are several self-assessment tools that behav-
ior analysts can use to become more aware of their own cul-
tural identity. We recommend the use of assessment tools for
measuring and reflecting on the clinician’s own cultural
biases, values, and understanding. One assessment tool, the
BDiversity Self-Assessment,^ that can be utilized during the
intake process allows team members to examine their under-
standing of diversity (Montgomery 2001); this tool asks users
to reflect on their own assumptions and biases by answering
11 questions. Another assessment tool that may be useful is
the self-test questionnaire entitled BHow Do You Relate to
Various Groups of People in Society?^ (Randall-David
1989). This questionnaire asks respondents how they might
respond to individuals of various cultural backgrounds—by
greeting, by accepting, by obtaining help from, by having
background knowledge about, and/or by advocating for the
individuals. The 30 types of individuals in these questions are
then organized into five categories: ethnic/racial, social issues/
problems, religious, physically/mentally handicapped, and
political, and a concentration of checks within a specific cat-
egory of individuals or at specific levels of response may then
indicate a conflict that could prevent the respondent from pro-
viding effective treatment. Behavior analysts can then consid-
er how their biases might affect treatment and may consider
other courses of action, such as making referrals to other be-
havior analysts. A final potentially useful measure is the
Multicultural Sensitivity Scale (Jibaja et al. 2000), a 21-item
self-assessment tool developed as a valid and reliable way to
measure multicultural sensitivity. This tool was originally
used to assess the multicultural sensitivity of teachers and
was later adapted to be used by physician assistant students
(Jibaja-Rusth et al. 1994). Altogether, the behavior analyst
may find these assessments helpful in further developing their
own cultural awareness in order to further develop culturally
competent methods of service delivery.
Developing Cultural Awareness of Clients
The above section describes strategies for how a behavior
analyst may learn about his or her own cultural system.
Below, we describe how behavior analysts may learn more
about their client’s cultural system through assessment prac-
tices. Culturally aware assessment practices may allow behav-
ior analysts to obtain important cultural information about
clients in order to understand their worldviews. Culturally
aware assessment may also allow behavior analysts to identify
any potential cultural barriers such as modalities of commu-
nication and expression of emotions (see Garcia et al. 2003).
To increase the probability that assessment will identify
cultural variables, Vandenberghe (2008) recommends focus-
ing on functional relations and behavioral principles rather
than topography. For example, Filipino families often live
with extended family members, and the household situation
can seem chaotic by Western living standards. If a child has
difficulty sleeping, a behavior analyst may advise the parents
that they should separate the sleeping room from the living
room. People of Filipino descent may be shy about responding
to someone in a position of authority, so they may say Byes^ to
the behavior analyst. However, during the following session,
it might be revealed that the parents did not change anything
and that the child is still sleep deprived. In this case, a natural
reaction may be to become frustrated with the lack of parental
follow through. However, lack of follow through may also be
http:turalidentity.We
88 Behav Analysis Practice (2016) 9:84–94
interpreted as an indicator that the intervention recommenda-
tion may not have been culturally appropriate.
Vandenberghe’s (2008) description of functional analytic
psychotherapy may also be a useful resource for determining
how to provide culturally aware behavior analytic practices.
Vandenberghe (2008) emphasizes the need for a behavior ana-
lyst to be aware of differences that may exist, including cultural
differences, between the behavior analyst, client, and their fam-
ilies. Specifically, behavior analysts should be knowledgeable
about the client’s culture, differentiate between an unfamiliar
cultural norm and a pathology, and take culture into
consideration during the therapeutic process. Finally, Hymes
(1962) noted that communicative competence is related to an
individual’s awareness of the laws of language structure and
language use within a given culture. Therefore, behavior ana-
lysts should be skilled in sending and receiving cultural com-
munications. Specific recommendations are described below.
Recommendations
Consider the Language of Assessment Our first recommen-
dation, which applies to all phases of assessment and treat-
ment, is that behavior analysts should reflect on the spoken
and written language he or she uses and how it will be per-
ceived by the client. We recommend behavior analysts avoid
the use of behavior analytic jargon, as it may confuse clients
and their families, and possibly lead to their failure to imple-
ment interventions. This recommendation is consistent with
the Professional and Ethical Compliance Code for Behavior
Analysts (2015). For example when the phrase Bfunctional
analysis^ is used, Japanese families assume that it is mathe-
matical jargon rather than a reference to a behavior analytic
assessment process. Avoidance of excessive or complex be-
havior analytic jargon may eliminate such problems.
It is important throughout assessment and treatment to
communicate in a manner easily understood, culturally aware,
and does not include terms that are culturally inappropriate or
confusing (Rolider and Axelrod 2005). Furthermore, it may be
important to consider who will be completing service related
forms (e.g., intake paperwork) and whether the level of liter-
acy and comprehension of the language used in the forms are
similar. If a person lacks adequate language comprehension,
completing paperwork may be difficult, embarrassing, or in-
timidating. In such a case, behavior analysts may consider
giving the person the opportunity to complete the forms orally
or have another person help with the form completion. They
may also consider using an interpreter or providing forms in
the person’s native language. Additionally, we agree with
Vandenberghe’s (2008) recommendation that the language
used to define problem behaviors should be carefully exam-
ined to ensure the behaviors are communicated in a positive
manner using multiple forms of communication that are sen-
sitive to potential cultural differences in eye contact, wait time,
meanings of words, non-vocal body language, personal space,
and quality of voice.
Understand Cultural Identity Our second recommendation
is to consider that the client, and the client’s family and com-
munity, are important sources for acquiring an understanding
the cultural identity of the individual. Therefore, we recom-
mend conducting an analysis of cultural identity with stake-
holders immediately after service initiation with the client and/
or family. The cultural identity analysis should inform the
assessment process and the designing of interventions.
During intake, the behavior analyst may, with proper consent,
gather input from key community members familiar with the
client, in addition to those whose feedback is typically sought
(e.g., teachers, professionals, administrators, and family).
Additionally, the behavior analyst should seek recommenda-
tions from the family regarding additional parties (e.g., other
community members) who should be involved. Family and
community members may be able to provide the most valu-
able information regarding the client’s culture, language, and
sociocultural framework (Salend and Taylor 2002). These dis-
cussions will allow members of the team to acquire a mutual
understanding of the client’s cultural system, which may result
in increased cultural awareness.
It is important to highlight that the client/family’s language
is an important cultural variable that should be understood in
addition to collaboration with stakeholders. For example, be-
havioral patterns may be similar across cultures, while
the language and concepts that are used can differ
(Vandenberghe 2008). In Japan, parents and teachers may
use the word Bpanic^ to describe a child’s behavior, and this
may imply a Btantrum^ or Bmeltdown.^ Because the word
Btantrum^ is often associated with baby colic behavior, par-
ents and teachers may prefer to use Bpanic^ to describe the
aggressive behavior of older children. Without knowing this, a
behavior analyst may initially misunderstand what the client’s
challenging behavior is. It is therefore important for behavior
analysts to clarify what the client or family actually mean by
the terms they use.
The behavior analyst should also consider accounting for
what treatments are appropriate, preferable, or considered
norms within a culture. As illustrated by the example of the
Filipino family at the beginning of this section, identifying
cultural norms may be important for successful assessment
and effective treatment. Information about what is acceptable
within a person’s culture is also ideally obtained beginning
with the intake process (and later during the assessment pro-
cess) by including stakeholders in the process and ensuring
that background information includes input from multiple
sources of information (assessments and interviews; Sugai
et al. 2012). For example, the grandparents rather than the
parents may be the primary caregivers in an Indian family.
Therefore, it would be important to include the grandparents
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89 Behav Analysis Practice (2016) 9:84–94
during intake in order to obtain information. During later
phases of the intervention, it may also be beneficial to contin-
ue to involve the family in development of the data collection
and to make changes in the intervention based on the family’s
interactional style. In designing the intervention, the team will
then be able to include culturally appropriate reinforcers and
skill building, again taking into account strategies that are
appropriate to the client’s culture and belief system.
It may also be important to …
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Losinski forwarded the article on a priority basis to Mary Scott
Losinksi wanted details on use of the ED at CGH. He asked the administrative resident